Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Friday, September 19, 2014

Christi Remembered (5/12/97 - 9/19/06)

Eight years ago today, our cherished and beloved daughter, died of neuroblastoma. Christi was 9 years old on the 19th day of the 9th month of the year. It was 9:00am when she took her last breath. I thank God Shayne and I were both awake and with her when she left us. Shayne sat beside her and held her left hand; I sat on her bed and with my hands on her left thigh. Each time we thought she took her final breath and was gone, she would let out one more. That amazing girl actually had us giggling as she died, which was so typical of how it was in the fullness of her life. Through my tears, I told her she didn't have to be a superstar, she could just relax and go. I don't think she really cared that she was dying; she was in unbearable pain and just wanted to feel better. Not a day goes by when we don't think of Christi and long to have her back. I'm sometimes haunted by some of her last words, "I hurt all over" and Shayla's, "I don't want to be an only child! I love Christi!" I know it bothers Shayne that he had to give her painful shots, often every day for weeks, and that whole process - especially with a little girl fearful of needles - was horrific! He hated yet, yet all most childhood cancer parents have to do these horribly inhumane procedures and it is the most unnatural thing in the world.

It has been said during Christi's four year continuous battle with cancer, where she was always in treatment and never made it to remission, that I only posted her "cute and spunky" pictures on her website (www.ChristiThomas.com) and that I rarely showed the true and ugly side of childhood cancer. I must admit that is probably true and I did hide a lot, not wanting others to see her when she wasn't "pretty". Well, in honor of Childhood Cancer month, and as I'm a bit "salty" over her death, I'm doing some of that today too! I'm sharing what childhood cancer looks like and I'm also not too happy that in the eight years since her death and in the 12 years since her diagnosis, the statistics of living for just five years after being diagnosed with neuroblastoma stage IV is only 20%. These poor kids only have a twenty-percent chance of making it through the next five years! Christi made it for four! Why has this not improved in 12 years?! Why are CHILDHOOD cancers not a priority?! Childhood cancers are not the result of poor lifestyle choices. These children and teens have done nothing wrong!

If you want to help children fight cancer, please don't donate to a "general" cancer organization, but to one designated especially for children and one for childhood cancer research - like Alex's Lemonade Stand. Shayla has partnered with Heidelberg University again this year and together they are holding their annual "Christi & Alex's Lemonade Stand" on campus on September 30th. If you can't attend in person, we invite you to use the link below to make a donation. As Shayla will tell you, even donating a small amount helps. It all adds up! Together we can help fund a cure. Thanks for your consideration!http://www.alexslemonade.org/mypage/1119350






5 Comments:

At 19/9/14 2:29 PM, Blogger jo said...

Been checking back all day waiting for your post. Just wanted you to know we remember Christi always but especially today. Praying for your family, keep doing all that you are doing and one day we will have a cure.
Love and hugs Jo xxx

 
At 19/9/14 5:00 PM, Anonymous Miyuki Masuda said...

In loving memory of Christi, she will be missed forever. I'm thinking of you, my dearest Thomas Team.

Yours,
Miyuki

 
At 20/9/14 1:39 AM, Anonymous Anonymous said...

Thinking of you today and always.

 
At 21/9/14 12:51 PM, Blogger Amber Furniss said...

8 years! It all feels like yesterday when I read about Christi's passing. Time really does fly. Your precious Christi will always be remembered by so many people, she was too brilliant to not be! Thank you, Christi, for everything you were and everything you did, this world is truly a better place because you were here. Angela, Shayne & Shayla, you continue to inspire me to be a better person and for that I have to thank you. Thank you for sharing Christi with us and thank you for continuing to share yourselves with us. With love and hope for a future where Neuroblastoma is no longer - Amber. xxxxxx

 
At 3/10/14 6:07 PM, Anonymous Anonymous said...

I've been following for a while, always think of you on this day. Christi was one of the reasons I became a pediatric oncology nurse.

Read this article today and it echoes the sentiments above about the need for research and the cruel nature of this disease. Thought I would share.

http://www.huffingtonpost.com/erin-santos/what-cancer-left-behind_b_5801346.html

All the best to you and your family - hugs.

 

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