Morning Update

Thank you to the beautiful nurses who kept taking my phone calls and giving me “Christi Updates” every time I called them with worry from the Ronald House last night where I was trying to sleep with Shayla. I was back over here by 7AM and Shayla immediately walked across the room and piled on daddy to catch some more zzz’s. As of this morning, this is what Christi looks like snuggled up in daddy’s GSB shirt with some stuffed animals.

She told me all she needed was a hug so I hugged her gently. Although I couldn’t bring myself to ask, I know she’s hurting. Using some of her American Girl shower gel she loves from home, I gently washed her feet with warm water. Today we’ll meet with the radiation oncologist as she will have to do the simulation set up to add her entire left leg into the radiation plan, in addition to her brain radiation. I wish there were a better way to get her over to HUP for her radiation. She’s in a lot of pain riding all the way over there in the wheelchair despite my best efforts of easing her discomfort with a pillow and a blanket.

This is all like a slow motion nightmare, truly surreal.