New "lumps"

Well, burying our heads in the sand was fabulous, but we can't do that any longer - the reality is now facing us "head on". Yesterday after school I noticied Christi kept rubbing her head while she sat reading yet another chapter book at the kitchen table. When I asked her she told me, "Theresa found a bump on my head at school today." (Oh, talk about your heart dropping - hearing of a new tumor is never a good thing.) I asked her if it hurt and she said, "No, not the big one, but the little ones do." (OK - double whammy! What a shock!) With heart racing, I called Shayne and said, "I'm sick and you're about to be." We decided to keep an eye on it because she still feels incredibly well - laughing, playing, joking, staying up late and eating very well. (I wasn't able to sleep at all last night. As soon as I'd start to fall asleep, my body would jolt me back awake.) So, I just emailed Dr. Maris and we'll see if they want us to come to CHOP earlier to scan, change plans, etc. She continues to have off and on headaches, blurred vision and today lost her balance at my friend Shari's home as she brought her home from school after lunch with a headache.

Well - just in: Dr. Maris's email:

"I am very sorry to hear this. I am still hoping that this is nothing, but I think we should see her next week and set up a MIBG scan also. If things getbetter over the weekend, we can hold off, but regardless it sounds like we should do an interim disease eval.whether we go with cycle #2 or not. If we decide that the disease is worse, we will come up with an interim plan. I am available this weekend if something changes. Hoping for the best, but preparing for not the best, jmm"