Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Friday, January 27, 2006

New "lumps"

Well, burying our heads in the sand was fabulous, but we can't do that any longer - the reality is now facing us "head on". Yesterday after school I noticied Christi kept rubbing her head while she sat reading yet another chapter book at the kitchen table. When I asked her she told me, "Theresa found a bump on my head at school today." (Oh, talk about your heart dropping - hearing of a new tumor is never a good thing.) I asked her if it hurt and she said, "No, not the big one, but the little ones do." (OK - double whammy! What a shock!) With heart racing, I called Shayne and said, "I'm sick and you're about to be." We decided to keep an eye on it because she still feels incredibly well - laughing, playing, joking, staying up late and eating very well. (I wasn't able to sleep at all last night. As soon as I'd start to fall asleep, my body would jolt me back awake.) So, I just emailed Dr. Maris and we'll see if they want us to come to CHOP earlier to scan, change plans, etc. She continues to have off and on headaches, blurred vision and today lost her balance at my friend Shari's home as she brought her home from school after lunch with a headache.

Well - just in: Dr. Maris's email:

"I am very sorry to hear this. I am still hoping that this is nothing, but I think we should see her next week and set up a MIBG scan also. If things getbetter over the weekend, we can hold off, but regardless it sounds like we should do an interim disease eval.whether we go with cycle #2 or not. If we decide that the disease is worse, we will come up with an interim plan. I am available this weekend if something changes. Hoping for the best, but preparing for not the best, jmm"

32 Comments:

At 27/1/06 4:37 PM, Blogger Spring said...

Oh, Angela, I'm so sorry. I'm praying here. I just don't know what else to say. Please, God, please don't let this be what it looks like! I'll be waiting anxiously for word.

Much love to you and your dear, sweet family,
Spring

 
At 27/1/06 4:54 PM, Anonymous Anonymous said...

Dearest Thomas Family,
I "met" you when a good friend had a son with NB and I was doing some research. Christi touched my heart and I have been silently following her story - what a beautiful and brilliant child.

You will be in my prayers even more than before. Much love to you from Cape Cod, MA

Fondly,
Beth Sullivan

 
At 27/1/06 4:57 PM, Blogger HeatherB said...

Oh my goodness, I'm just sick and so saddned for and with you.

Oh how my heart hurts- you know I love you guys dearly and I'm praying for all of you.


Much love, many prayers,

Heather

 
At 27/1/06 5:13 PM, Anonymous Susie said...

keeping your family in my thoughts and prayers.

God be with your family,
susie

 
At 27/1/06 6:24 PM, Blogger Tammy Dennis said...

First I want to thank you for sharing your life the way you do. My name is Tammy I live OKC,OK. I check on you all every day. I've never left you a comment, but after todays update God told me to post...My little boy (sweet Angel Cody Brown) passesd away 2 years and 4 months ago on Sept. 13, 2003 from NB. When he relapsed (after 2 years & 7 months of remission) NB came back in his head just like you wrote about today...I just wanted you to know that whether or not the chemo study workes (I am praying with all my heart that it will) that Christi will be healed. I have never met anyone like you Angela, you are the most amazing mother, you are so strong and courageous. Keep fighting the good fight and hold and kiss and hold and kiss some more that very precious little girl that GOD has blessed you with. I am praying for you and your wonderful family everyday. GOD bless you all.

 
At 27/1/06 6:36 PM, Blogger Jennifer said...

Oh my! I am praying so hard right now that this isn't what it seems. This can't be!

Love, Jennifer

 
At 27/1/06 7:06 PM, Anonymous brooke said...

Hi,
I'm the woman from Oregon who's been following Christi's story for a short while (and who's father is being treated at MSKCC for Stage 4 Prostate Cancer). Anyhow, I just wanted you to know that I'll be keeping Christi and the whole Thomas Team in my prayers.

 
At 27/1/06 7:36 PM, Anonymous Elizabeth said...

Lord, have mercy on this dear sweet little girl and her family and friends. You are the Great Physician and we pray for Christi's complete healing in the name of Jesus Christ our Lord and Savior.

 
At 27/1/06 7:47 PM, Blogger Kait said...

Oh...Thomas Team, my heart is breaking with yours. Prayers going up for sweet Christi.

 
At 27/1/06 7:53 PM, Blogger Cathy said...

Angela & Shayne ~ Please know that my heart is right there with you. Extra prayers are definitely being sent to you from MI. Hang in there.

Sending lots of love.

Cathy Rezmer

 
At 27/1/06 7:56 PM, Blogger Cathy said...

Angela & Shayne ~ Please know that my heart is right there with you. Extra prayers are definitely being sent your way from MI. Hang in there. Hoping with all of my heart for a turn for the better this coming week.

Lots of love.

 
At 27/1/06 9:03 PM, Blogger HeatherB said...

Still praying hard! Thinking of and loving you all here in Columbus!!

All of my love forever and always,
Heather

 
At 27/1/06 9:44 PM, Blogger California Friend said...

Damn! This was NOT what I was expecting to see when I logged on after work! How I wish I had a magic wand that, with one wave, would make all of this right & leave Christi in PERFECT health. I'm SO sorry, but will hope & pray that this is "nothing" and that the Thomas Team path will remain stable & then improve after Dr. Maris puts all of our fears to rest. Give Christi a big hug from me....and then pass them around the family too!! :-)

Much love from CA,

Pat

 
At 27/1/06 10:01 PM, Blogger Angela said...

Dear Angela and Shayne,

I'm so glad that Christi is still enjoying her dancing and school and not really noticing symptoms. How my heart sank when I read that she had found some new lumps. I pray that the new treatment will destroy these and rid Christi of this disease. The photo's are precious, Christi is beautiful!
Sending you prayers, hugs and love from Angela

 
At 27/1/06 10:45 PM, Anonymous Laura Lynn said...

My heart is saddened to hear of the lumps. I am praying that they are nothing and that the new cycle is working. May God bless Christi with complete healing from this horrible disease.

 
At 27/1/06 10:52 PM, Blogger docvee said...

You have all my prayers. I'm thinking...the books may have some comfort right now, believe it or not. Call if you need or want to talk, day or night...and---call collect!!!

Love, Vicki

 
At 28/1/06 12:17 AM, Blogger Enya said...

So there I was. Eating an overpriced salad at SaladWorks on Penn's campus, on my lunch break. I look out the window, and I see a woman. I immediately think, "hey, that looks like Angela Thomas." (Given, I only know you and your family through Christi's website.) Then I think, "no. they're at CHOP getting some protein fusion." Did I mention that I obsessively read your website? Then I take a good look at the skipping little girl by this woman's side. Though I never actually met her, I know this is the famous Christi Thomas. I gave a big smile and remember feeling thrilled that Christi and her mom just walked by me during lunch! I literally walked back to work with a smile on my face.

Needless to say, I have been nervously waiting for each update, hoping for good news. I was so sad to read this last update. I continuously pray that this is a bump in the road that can be overcome and nothing more. Your family is in my thoughts daily.

 
At 28/1/06 1:23 AM, Blogger Megan said...

Please dear God, heal sweet Christi!!!! She has so much to offer this world! Give her family strength dear Lord! Please God!! Please!!!!!!!!!!!!!!

 
At 28/1/06 1:31 AM, Anonymous Anonymous said...

I haven't posted to you in a very long time, but have followed your story from the beginning. I will pray for all of you, and wish upon a star, and cross my fingers and everything else....

Strength and peace to you...

Lynette

 
At 28/1/06 6:52 AM, Blogger HeatherB said...

Can't stop thinking of or praying for you. You have my love (for always) and my prayers (in abudance).

Loads of love, tons of prayers and a million hugs!!

Heather

 
At 28/1/06 10:04 AM, Anonymous Jessica Patterson said...

Shayne & Angela, my most fervent prayers are with you.

Lots of Love, Jessica

 
At 28/1/06 11:35 AM, Blogger Nicole said...

This is my first time posting a comment, but I've been following Christi's story for about 2 years. I've got the whole prayer team at my church in Stockbridge, Georgia praying for her and we will all continue to do so during these scary times.

Praying, praying, praying...

 
At 28/1/06 11:49 AM, Anonymous Leece, England said...

I'm praying for you little one. I came across Christies site (and many other sick children) when doing research into care practices...my heart broke for everyone of these families. Whatever the coming days and weeks hold for you, know that many prayers are going to heaven for you all.XXX

 
At 28/1/06 1:17 PM, Anonymous Ronit said...

Christi, just another person praying for you! That you keep feeling well, that you enjoy this weekend and that Dr Maris figures out a way to deal with these bumps.
I am so sorry you have to travel this very hard road, you are really amazing and we all love you!

Ronit

 
At 28/1/06 1:41 PM, Blogger The Farrell Family said...

Dear Thomas Family -

We are "praying without ceasing" for these lumps to just go away and to be nothing! You all are the most amazing family --- Christi is such a precious little girl (actually, BOTH of you girls are precious!). You all continue to be in our thoughts and prayers -- always!!!

Love -
Rob, Amy, Emily, and Ryan Farrell

 
At 28/1/06 1:45 PM, Anonymous Korina said...

You will be in my thoughts. I wish you the best

Korina

 
At 28/1/06 1:57 PM, Blogger sylvia said...

Hello there Thomas family...just letting you know that prayer for complete healing and only positive thoughts coming your way. I hope your day is filled with smiles and sunshine. love, sylvia

 
At 28/1/06 3:00 PM, Blogger Lon Guillory said...

Dear Thomas family,

My heart and prayers go out to you. I know words can only comfort so much in times of such uncertainty. I wish your little one all the strength and might to overcome this dreadful disease.

As I write, my girlfriend's 4yr old is battling the very same sickness and just completed the 1st treatment (day 3) of the same antibody therapy in a St. Jude's ICU room near Madelyn's. I stumbled upon your website in a quest to find other children who may be on the same trial.

Christi is darling and your family is an inspiration to everyone. There seems to be so much new research and clincal trials for NB...never give up hope. There has to be a cure around the corner to save all of our babies strickened with this terrrible illness.

Best wishes

www.caringbridge.org/LandonPitre

 
At 28/1/06 4:09 PM, Blogger Kait said...

Christi, I told some friends of mine about you and now you have a whole message board full of people praying for you to get better soon! Remember Christi "I think I can, I think I can, I think I can!"

Love,
Kaitlin from GA

 
At 28/1/06 6:18 PM, Anonymous Candy Belanger said...

Praying, praying, praying!!!
(And sending big hugs your way too!)

 
At 28/1/06 8:43 PM, Anonymous Colleen Kashino said...

Dear Thomas Team,

I tried for the better part of the day to come up with the perfect words to send, but then I gave up, realizing that what was important to me now, was you all knowing that I am one of the millions praying for you guys.

With Love,

Colleen Kashino

 
At 29/1/06 12:20 AM, Blogger twinkletoes said...

Thinking of you, and hoping these new lumps might just be swelling or something from the antibodies! Hang in there! :)

Christie
http://www.caringbridge.org/visit/christie

 

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