Just About Time

Seems like it's always about time and making the most of it so I spent today's time like I do most others- enjoying these amazing little girls and trying to soak it all in! The wonderful Great Aunt Marty allowed us to overnight last night and she baby-sat while I spent all morning at OSU in class. We spent the rest of the day enjoying their wonderful pond and of course the minature ponies! Aunt Marty is so kind. She even borrowed four seven week old kittens for the children to enjoy.

Early tomorrow morning it'll be time to head to Philadelphia again. Christi and I'll head to the airport while Marty will care for Shayla until we return late Wednesday evening. I'm dreading the trip and the news it may bring. Thankfully, Christi continues to feel tremensous; however, the "sprouts of hair" she'd been growing over the past couple of weeks were all rubbed off today. It must have been a combination of the sunscreen and the sand she enjoyed rubbing on her head because now her head is completely smooth and shiny again! (Maybe she discovered a new secret technique to keep Daddy's bald head smooth! Hee hee!)

Thank you for loving Christi and our family! Thank you for lifting us up in prayer. Our meeting with Dr. Maris is scheduled for 9:00 AM on Wednesday. The best I can hope for is that she had a "response" of some sort to this treatment. I know the best of odds were that 29% of the 30 children achieved a response that held for 1-3 months, no more. No child became NED as a result. I feel like we've already received a fabulous blessing of one month; yet, I desire more, more time, more treatments, more of having Christi with us here on earth. Future treatment options are not promising- yet our only hope of gaining more time with our beloved daughter. Quite frankly, I'm scared. Your divine intervention is most welcome then, and always. It's all about time and I long for her to have 70 more years!