Finally the Photos Loaded!
Blogger is now allowing me to post the photos I'd had intended to post with my last set of text. Additionally, I had assumed that I'd be back at Ronald with Shayla by now; however, as I was ready to pack up Christi had another tremendous break through with her pain. As she screamed in horrific pain I, for the very first time, asked God to "please take her now". As Shayne texted me days ago, "I am no longer afraid of hell after watching her suffer, nothing could be worse."
I am still clinging on to the slight chance of hope that this radiation may be working to give her pain relief and to give us more time with our courageous and beautiful hero. The CT results I now have printed copies of say that overall the brain tumor is slightly decreased in size.
Today's pain was mainly in her back. Dr. Maris is right, it appears we're now trying to chase the pain. It seems to be moving each day telling me the combination of about seven different chemo's she's now on isn't working as it's taking over the bone marrow. Christi asked many times today, "Why does it hurt so bad," responding, "it's the cancer," wasn't a good enough answer. At this point I cannot even look any one in the eyes as I'm afraid to see their painful looks of fear and sadness staring right back at me.
Prayer Request: for pain relief for Christi, for peace for her precious soul and for strength for the weary Thomas team
This is the hard mesh mask which is pushed against Christi's face for her brain radiation. Her head "rests" upon that hard red block- true torture.
A very tired daddy reads "Stink" to Shayla.
Shayne took Shayla out to feed the squirrels today which brought them both joy.
Sitting and watching sissy play video games.
Shayla's been enjoying the wheelchair in our room.
Today she actually sat up for a bit! Go Superhero, Christi!
Christi getting set up for the leg radiation treatment.
11 Comments:
Ok. That mask looks like something out of a horror movie. It is just too surreal. No wonder poor Christi was so terrified. I hope it is having some effect and buying her some pain free time. I pray for relief for Christi, and strength for her poor family. None of you should have to go through this. You are a wonderful and beautiful family and do not deserve this horrible torture. I hope tomorrow brings better news and a bit of peace.
the thought that your beautiful girl is so afraid and in such pain is just gut-wrenching. i wish you peace and joy and most of all i wish for an end to christi's pain and for her to be HEALED here on earth and to be with you forever.
Dear sweet Christi....oh honey, how I wish I could take the pain for you...you are such a brave soul....I don't think that I would be that courageous...Dear God, please hear our prayer. I do love your butterfly PJs! And those colorful, cheerful pillow cases! Good thing Michele didn't see that Princess' pillow case when we were there.....I might have found it on her pillow! : )
Miss Shayla...you are amazing, sharing your smiles and being such a wonderful help to mom, dad, and Christi. Love that smile....and that neat braid in your hair! And seeing the picture of you feeding the squirrels instantly brought back a very special memory of when my dad would take us to the park to feed the squirrels when I was a little girl. Thank you for that memory.
I'm hoping that by the time you read this, that Christi's pain is back under control. Not a second goes by that you are not in my thought and prayer.
Thank you God for the special angels that appeared today in time of need. Please send many Guardian Angels to Christi tonight...let their wings surround her and comfort her, keeping her free from pain, allowing her to feel Your presence, chasing all fear away. Amen.
still praying for pain relief for christi, and calm & rest for you, shayne, and shayla. i'm checking constantly for updates. keep in mind that we're all out here praying & loving you guys!!
Clinical trial bone pain treatment. Might be promising:
http://www.bnl.gov/bnlweb/pubaf/pr/1995/bnlpr092195.html
-Melissa B
Praying for sweet Christi and the entire Thomas team. I love you all!
I've come to Christi's page throught Eden's page. I just wanted to let you know, that I am praying for your entire family, and that I feel that Christi, is one AMAZING girl! I'm 33 and have cancer, and I can not even imagine, being as young as Christi, and going through this. BIG hugs to Christi, from Barb in Canada.
Could you please post the mailing address at HUP??? I have a package to overnight!
Could you please post the mailing address at HUP??? I have a package to overnight!
I'm praying for all of you, I hope that Christi had some relief from her pain today.
I love you all.
With love and prayers for always,
Heather
Lord where are you???? No sweet innocent child should ever be in such pain. Please lord, guide the doctors to get sweet Christi's pain under control and give her tremendous family the strength to endure. Hear our prayers....
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