Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Thursday, September 07, 2006

Harder & Harder

May God bless and comfort Christi
Helpful Sissy tucks Christi in (again).
Mommy & Christi
Today's Radiation
Sleeping Warrior













As this is becoming more and more difficult to write about, I’ll be quite
brief:

*Christi’s pain is under better control since the narcotics were
increased today.
*Christi’s LDH (which measures the aggressiveness of the tumor cells)
went from 2,500 last week to 12,899 today. (Normal 420-700)
*Christi’s chemotherapy was discontinued today due to the
aggressiveness of this damn, evil disease which I will curse to my grave.
*Shayne and I met with the palliative care team to start to work out
our transition back home, most likely next week.
*Christi received radiation to her brain and her left leg today.
*Christi’s blood pressure continues to be high while her heart beat is
low (not a good combination).
*Christi was awake about 30 minutes today and ate a few bites of
cereal.
*We thank the sweet ladies at the Penn Vet Hospital for taking Shayla
for many hours today as we were on continuous adult conversations.
*During a long reality chat with Shayla she finally told me her
feelings. “I don’t want to be an only child,” was the first of many sentences
out of her mouth.

28 Comments:

At 7/9/06 7:04 PM, Blogger Melinda Auld said...

through tears and anguish, praying for you, and holding you up...

 
At 7/9/06 7:09 PM, Blogger HeatherB said...

With tears and sadness for all of you.

I shall curse this damn, evil disease right along with you.

May God wrap his loving arms around you all and give you peace.

I'm praying for all of you.

With lots and lots of love and tons of prayers,
Heather

 
At 7/9/06 7:22 PM, Blogger Lisa said...

There is nothing i can say to ease your pain. But please know that although your meeting was short our love your your family is stong and our prayers for Comfort and peace are never ending.

Lisa and Eden Adams

www.edenadams.com

 
At 7/9/06 7:25 PM, Blogger Melinda Auld said...

sorry, i know i already posted a comment but i just can't stop thinking about christi. it's just so unfair and so cruel. i am so very very sad for all of you. im so sad for christi, who deserves to LIVE. she is so special and has touched so many lives with her courage, grace, tenacity, intelligence and unassuming spirit. if there were more people in the world like her, there'd be no need for a heaven, because we'd already be there.

 
At 7/9/06 7:28 PM, Blogger Kim said...

How can I stop the tears after what I've read? Why do I want to, knowing that you have shed infinite times more than I. There are no words to describe my sorrow for you, and also no words to describe my admiration. I have never met any of you, yet I am feeling such heartache. How must those who know and love sweet Christi the most feel?

I am so sorry. I will keep all of you in my prayers - prayers for peace and that God's love will guide you during this most horrific time.

With love and admiration -

Kim

 
At 7/9/06 7:39 PM, Blogger Jolene said...

I hate cancer.

I am praying for you all.

www.carepages.com sjmosley

 
At 7/9/06 8:06 PM, Anonymous Anonymous said...

I pray for the entire Thomas team..Each time I come to check up I am brought to tears. I just wanted to stop by and send my prayers as always.

 
At 7/9/06 8:41 PM, Blogger Jennifer Lehmann said...

My eyes are burning from tears. I cannot believe this. It is so surreal. Praying for Christi's comfort and that God gives you the strength to make it through this.

Love you.

 
At 7/9/06 8:41 PM, Blogger  Kim said...

May God hold you in the palm of His hand as you journey down this road with Christie. My heart is breaking for you---and I so wish there was something I could do or say to ease your pain.
Tears and hugs for you~~
Kim in Seattle
(the mom who sent some Hank the Cowdog books to Christie a couple of months ago)

 
At 7/9/06 8:58 PM, Blogger Candy said...

I'm so sorry this is happening. May God hold you all firmly in His grasp and bring Christi comfort.

 
At 7/9/06 9:43 PM, Blogger Kait said...

Holding you all close to my heart tonight as you prepare to take sweet Christi on her journey Home. May God grant you strength and comfort and stay by your sides always. Please tell little Shayla that, no matter where her sister is, she will never be an only child. Christi is now and always will be her sister. My tears are flowing freely tonight as I've watched this precious child grow through her four year battle. Christi is my hero and she's taught me more about life than anyone. I love you all.

 
At 7/9/06 10:06 PM, Blogger HeatherB said...

Thinking of you all tonight and praying for a restful night for Christi and all of you somehow.

May God wrap His loving arms around you and give you His peace.

I love you,
Heather

 
At 7/9/06 10:07 PM, Blogger KINTHEATL said...

I will be praying for your sweet child. May God watch over all of you.

 
At 7/9/06 11:28 PM, Blogger Mylissa said...

Dearest Thomas Family...
There are no words during this time, only prayers for comfort, strength, wisdom and peace. Wishing tonight there was some way to ease the pain in your hearts...

Much love,
Mark and Mylissa Horrocks
Habitat for Hope

 
At 7/9/06 11:42 PM, Blogger Liv said...

Sending you love and hope. I will spend my day praying for God's glory and His miracles. May He bless you today.
Angel Olivia

 
At 8/9/06 12:55 AM, Blogger brooke said...

Oh Thomas Team! My heart breaks for all of you. I don't have any words of inspiration, just words of prayers. You are in my prayers. I pray that Christi is out of pain. I pray for Angela and Shayne's strength as you continue this difficult journey. I pray for Shayla as she walks this path at such a young age.

Thank you for sharing Christi's fight, but more importantly who she is, she is such an incredible young woman. Also, thank you for sharing yourselves during such a difficult time with the world. It is an honor to be able to support such wonderful strangers.

-Brooke, in Logan, UT

 
At 8/9/06 3:23 AM, Blogger merry said...

I am so glad your sweet girl's pain is under better control. You don't know me, but even I, a stranger, am worried and frightened for Christi, that she should be suffering this way. I hope peace from pain comes for her soon, as strongly as I have ever hoped for anything.

My heart is bleeding for you all. Not least for Shayla - I too was robbed of my sister through cancer (leukaemia, aged 3) and grew up alone. My mother however was insistent that I was not 'an only child' and that even though my sister had died, she would always be a part of the family.

Love and strength to all of you.

 
At 8/9/06 3:24 AM, Blogger Eugenia said...

I'm so sorry. Desparately praying for your beautiful family from CA,
Eugenia

 
At 8/9/06 5:40 AM, Blogger thonmom06 said...

Hope ~ it conqures the sorrow
Shout ~ it eases the heartache
Cry ~ it soothes the pain
Pray~ it brings peace

Good morning Angela, Shayne, Christi, and Shayla. I have shed many a tear with you these last few days. I continue to pray through each night for this part of the jorney.

Dear Jesus, do You hear the cries? Do You feel the sorrow? You have been where Christi is. Your mother walked with you and has stood at the foot of cross. She knows this heartache. I believe You make your presence known in the most intense love of Christi and Shayla's parents, Christi and Shayla's love for each other. In the smiles and distraction of the angels from Penn Vet, the compassion of the palliative pain care team, the care of all those who walk in to check on Christi. We thank you for Shayla being able to express her fears. Comfort Angela and Shayne in their fears as well. Dear God, gather this family into Your arms....and let them feel the love and hugs that we all send their way. Amen

Please hug each other for me.

much love ~ Sylvia

 
At 8/9/06 6:24 AM, Blogger nikki the red said...

i love all of you. continuous prayers for peace, calm, strength, and pain-free.

 
At 8/9/06 7:33 AM, Blogger HeatherB said...

Thinking of you all this morning and praying that Christi is having some pain relief.

My heart breaks for all of you. I wish there was more I could do for you all.

I love you guys.

Thank you for sharing your beautiful and precious Christi with all of us. I've learned much from her.

With all my love, prayers and tears,
Heather

 
At 8/9/06 8:27 AM, Blogger Julianne said...

Constantly praying for your family.
FROGging all the way. I'm so terribly sorry that this is happening to Christi, your family or to anyone. This disease is horrible and I pray that a cure be found.
My prayers are with you and I understand that words can not dull your pain at this moment. I pray that Christi has the pain relief to leave her with 0 pain on a scale of 10. Shayla, you will always have a sister no matter what. She will be in heart (in all of your hearts) forever.

We all love and care for your family, we all may be hurting but its not even close to what you all are feeling. We everyone is here for you and praying always.

GodBless and Take Care,
The Erickson Family

 
At 8/9/06 8:42 AM, Blogger Kaivalya said...

Thank you for sharing with us, even through such a difficult time. I've been praying constantly for Christi and for your family. Hearts are breaking everywhere - she's such an couragous, inspiring girl. Love and blessings to you all.

 
At 8/9/06 10:02 AM, Blogger Julie said...

I saw the below link on a Caringbridge website and I immediately thought of you and how artistic Christi is. It's a way to preserve Christi's thumbprint as a sterling or gold charm. Being able to wear a unique piece of their beloved child is bringing comfort to another grieving mother and I thought that it might possibly be of some comfort to you at some point. This comment doesn't have to be posted, I just wanted you to have the information. http://www.thumbies.com/

My heart is so broken for your family and sweet Christi. I have been a visitor to your site for a long long time and will be praying for a miracle.

 
At 8/9/06 10:19 AM, Blogger monicac2 said...

God bless you, God bless you, God bless you. Please know that you are in my most fervent prayers.

 
At 8/9/06 10:29 AM, Blogger Becky said...

Hi guys, I've been reading your blog for a couple of years now. My boyfriend was a computer tech at ACC in Tiffin for awhile, and he told me he went to your house to fix your computer and that he noticed you had a website for your daughter. I ended up finding it and have been following you ever since.

Dustin and I just want to let you all know that we're thinking about you and our hearts are breaking for you right now. If you could ever use anything, please let us know. We are located in Bellevue. Please give Christi and Shayla hugs and kisses for us.

 
At 8/9/06 2:42 PM, Blogger Rebekah said...

I really don't have any words to comfort your sweet Christi and your family - just know that we are praying HARD for you in Minnesota ... God Bless you all as you travel this AWFUL Journey - Why do the young and innocent get taken so soon is beyond me ... sadly, there will be a lot of reunions in Heaven with other sweet children ... Praying!

 
At 8/9/06 4:30 PM, Blogger Kait said...

Shayla,

Please remember that just becuase Christi might not always be with you physically, you can carry her in your heart with you for the rest of your life. She will be there with you on the days when big and important things with you, and she will be with you on the regular days too. She will be there when you wake up in the morning and when you go to bed at night. You can talk to her whenever you want, she will always hear you. You are a FABULOUS little sister and I know Christi is blessed to have you in her life.

 

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