Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Friday, February 10, 2006

Not Today Either


(PHOTO: I wish she were still feeling like this now! This was taken while at CHOP last week. It reminds me of when I was pregnant with her and Dr. Cordero did an ultrasound and said, "I think it's a girl, but until I see a cell phone I'm not going to say it's a girl." Looks all girl to me! Chatting and shopping!!)

Last night Christi finally perked up and watched a DVD while making those cute little balloons clowns blow up and twist. (She's really good at it!) She ate a popsicle (first thing all day) and I thought things were on the upswing. I emailed my wonderful substitute teacher informing him I thought we'd both be back at school on Friday.

The shot was hard last night. At one point Christi said, "Dad, give it to Buttercup instead. I don't care if it kills her. I don't want that shot!!!" Christi loves her cat; therefore, I knew how horrible the injection was.

Then midnight arrived and her horrible pain was back. Her mouth/throat sores from the chemo, her eyes and her headaches all returned. We gave her different pain medications at various points throughout the night. I woke her at 6:00 AM and asked if she thought we could go to school or if I should call Mr. Jones to teach for me today and she whispered, "Call Mr. Jones". So sadly I did. She just loves school and I know how much she wants to get back to school and her friends!

Today she's complained that her back hurts as does her head, especially where the bumps are. I said, "I didn't feel any bumps yesterday." She said, "They're tiny now, but they really hurt." She ate a bit of a milkshake, and a few spoonfuls of Cheerios but that's all so far today.

Thankfully, it appears that Shayla just had a case of a "nervous stomach". She was fine at Mrs. Depinet's and fine at Grandma Nee Nee's. I do think she has been very worried about Christi and perhaps this is what happened. (She's also not very fond of school although I am always happy to get responses from staff about how polite she is.) I wish we had a guidance counselor at our k-8 school so that Shayla could talk to someone, but funding cuts a couple of years ago removed that option. Shayla seems okay, but I really wonder what's going on and how we can help her.

Well, Grandma Nee Nee used to be really high on my "I want to grow up and be just like you list" but all that has changed in the past 24 hours!!!!! (She's #1 on Shayla's list now, but not mine.) Grandma Nee Nee bought Shayla the pet she's been wanting - and not just ONE, but TWO HAMSTERS! Furthermore, Nee Nee didn't think they belonged in her condo as Shayne and I suggested, but in Shayla's room. Happy 7th Birthday, Shayla! (And how do you know if they're male or female? I'm thinking we may have TONS of hamsters in days to come.) ARGHGFGGGGGGGGGHHHHHH!!!! OK, I'm over it now. Yet when Christi woke up today she asked, "Why does Shayla have three pets and I only have one?" Oh my!!

So Shayla arrived home this morning to get changed into fresh clothes to go to school. Well we didn't communicate clearly enough to Nee Nee as she told Shayla no school today and she was coming home. When Shayla walked in the house at 8:00 AM I had her clean clothes lined up. She told me that Nee Nee said no school and I had to tell her that wasn't correct. She ran past me and locked herself in her upstairs bedroom sobbing. This is so hard! I'm anxious for her to come home from school today - except she'll probably ask me to hold one of her furry critters! YIKES! I love you sweet Shayla!

17 Comments:

At 10/2/06 1:53 PM, Blogger HeatherB said...

I'm so sorry to hear that Christi is still having so pain in her mouth and throat and head and eyes too. Poor sweetheart. I'll be praying for that specifically.

I'm glad Shayla wasn't ill for too long- that's good news. So, so funny about the hamesters- totally sounds like something only a Grandma would do. :)


Lots of Love,tons of prayers,

Heather

I love you all!!

 
At 10/2/06 1:55 PM, Anonymous Anonymous said...

I know that no words can make any of this easier, but your family is truly an inspiration to everyone that you encounter. Your courage, grace, determination, and faith are more than amazing. I will continue to pray for your family often.

Go Christi, Go!

 
At 10/2/06 2:17 PM, Anonymous Anonymous said...

Thomas team. Here's a little something I wanted to pass along:

MAY THE SUN
bring you new energy by day,
MAY THE MOON
softly restore you by night,
MAY THE RAIN
wash away your worries,
MAY THE BREEZE
blow new strength into your being
MAY YOU WALK
gently through the world and know its beauty all the days of your life.

-apache blessing

All of you will forever be in my prayers.

Greg

 
At 10/2/06 4:08 PM, Anonymous Anonymous said...

Dear Sweet Christi -

I wish I could take your shots for you. No child should have to be going through what you are going through.

Just try to keep in mind that they should make you better!!

Thank you so much for the Thomas team to keep everyone informed!! I do not know how you do it.

Being a parent is difficult enough without this!

Prayers Always and Often!!

 
At 10/2/06 4:15 PM, Anonymous Anonymous said...

Congratulations Shayla on "scoring" some hamsters! I am an auntie (almost as fun as being a grandma)and love being able to spoil my little ones too. Covering you all in prayer and love as you keep faithfully walking day by day.

Much Love, Jessica in CA

 
At 10/2/06 5:18 PM, Anonymous Anonymous said...

Hi Thomas team we will continue to keep you in our daily prayers. We will especially keep little Shayla in our prayers this very hard for this little girl to cope with . Keep praising the Lord. Have a great weekend Christi :) :)

The church of the Nazarene has a heart for you all .

UpperSandusky, Ohio

 
At 10/2/06 5:31 PM, Anonymous Lisa Burt said...

Prayers for little Christie, and I swear, hamsters are lovely once you've held one...but i would put them in two cages, even if they are same sex they can fight each other once they are mature and its not pretty. So hope Chrisitie can have some happy time XXX

 
At 10/2/06 6:18 PM, Anonymous Candy Belanger said...

Sending BIG hugs from Michigan today, along with hopes that the weekend will bring better days for Christi.

 
At 10/2/06 7:22 PM, Anonymous Anonymous said...

Thomas Team,

Sorry Christi didn't make it to school today either. And about Shayla's nervous stomach, maybe you are right she needs someone to talk about it all. But glad she got two hampsters!

Here's praying any more shots go smoothly.

susie

 
At 10/2/06 7:36 PM, Blogger The Adams' said...

Christi- Oh My!!!! (:^D) Tell Shayla to make sure she does not keep Buttercup and her hamsters in the same room together...okay?? (Of course, Buttercup would be thoroughly entertained, wouldn't she.......??) We will continue to pray for you and your family, and for sweet Buttercup, and all your doctors and other cargivers. Hugs! Kim, Todd, Katie and Emily

 
At 10/2/06 7:49 PM, Anonymous Anonymous said...

Shayla, this comment is just for you.. you are a very smart and brave little girl, i know things must be rough for you but you are the best little sister ever.. stay strong for your big sis and parents. they all love you sooo very much......

 
At 10/2/06 8:05 PM, Anonymous Anonymous said...

Hi Angela,

I used to give all my classroom gerbils' babies to the local pet store. Now that you have two hamsters, I can only recommend that you put them in separate cages. See? Problem solved. I just wish it was that easy to cure Christi.

We're praying for her on every detail you write about in the blogspot. I hurt for her, and for you parents. It's hard to put neosporin on my son's boo-boos, and to read that you have to give her such a painful shot just breaks my heart. So I pray for all of you every day.

Thank you for keeping us updated.

Love,
Lynne Wynn

 
At 10/2/06 9:22 PM, Anonymous Anonymous said...

{{{{{{{HUGS}}}}}}}}
Come on Christi! Keep fighting girl! Hope you feel better REAL soon!
Megan in NC

 
At 10/2/06 9:57 PM, Blogger susan said...

Christi,
Just checking on the famous Miss America 2006 from Ohio. I sure hope and pray the your eyes will feel better soon Christi, no one should have to live like that I also live with pain on a daily basis like you and it is exhausting. Then we have to take all the natcotic's for pain control and I am no good after that, I need to sleep. I am on a 24hr infusion of Fentanyl and codein so although my illness is nothing compared to what you are going thru, I do feel for the pain you are having my love and I so wish I could make it go away for you and me. You are in my thoughts and prayers Christi as is your sister, Mom and Dad. I am glad to hear that poor Shayla is feeling better, it's hard for her to see you ill, she just love her big sister so much, so hugs and kisses to both of you.
I wish I had some magic words to say but I don't, I just know that I love Christi, she has been aroung my house (computer) since diagnosis and although I know how bad this disease is I never thought you would relaps, the ABT? seemed to be working. Some things I will never understand. I do however, understand that you dear Christi are a fighter and so are your doctors that is why I believe you will get well again.
May God Bless you all and keep you safe.
love susan

 
At 11/2/06 12:09 AM, Blogger ChristineH. said...

Hello Thomas family-
I hope the weekend is better for all of you and especially a Happy Birthday for Shayla.

I'll be thinking of you Christi! I pray you will feel better - I miss your funnies.

 
At 11/2/06 2:28 AM, Anonymous Colleen - Kaitlyn's mum said...

OK... With our language differences I seem to not know what a HAMSTER is??

Please Shayla - I need a picture of your new pets.

Colleen - Kaitlyn's mum
www.caringbridge.org/ne/kaitlyn

 
At 15/2/06 8:45 AM, Blogger Angie-Girl Scout assistant leader said...

Hello Thomas Team!!
Happy Birthday Sweet Shayla!!
Christi,
You are a wonderful, intelligent,sweet and strong girl! Keep on fighting sweet one! I look forward to seeing you at girl scouts again very soon!
Angela and Shayne,
You two are wonderful and strong people and I want you to know that your team has been in my prayers every night and will continue on for as long as needbe! You have 2 beautiful, strong, caring, sweet and polite little girls! I truly enjoy the time we get to spend together at girl scouts!
I want to offer any time that I can to be a sounding board for Shayla. I know that you are concerned with her needing someone to talk to and it is so unfortunate there is no counselor at the school. I have thought that many times! I am no counselor, but do get to spend a fair amount of time with her on Friday's in the classroom and at girl scouts. If she ever needs to talk, I am available! Maybe during lunch time on Fridays or even at the scout meetings. Maybe talking to "Gabbi's mommy" may help? It's funny that we seem to lose our name when we have children and become the "mommy" to all of the friends! LOL
Hugs and prayers for all of you!! Stay strong!
Angie-assistant girl scout leader

 

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