Day Two Down
It was a long seven hours spent at CHOP, but finally Christi completed all of her testing procedures scheduled for Tuesday. She continues to amaze me with her incredible ability to read for hours in waiting rooms, never losing her patience. (I managed to get a lot of reading done today too, but I don't exactly have her patience as I found myself doing a lot of foot tapping today!)
Walking back to Ronald in the intense heat (99 degrees today) we made a plan to stop some place fun every two blocks to cool off, so we did! (Newstand for her Cheetos, shade tree to feed some Cheetos to the squirrel, Starbucks for organic, fat-free vanilla milk, Barnes & Noble for a new chapter book- which she's nearly finished & 7-11 for a Slurpie.) She wasn't hungry for dinner tonight (Imagine that!) so we talked about walking down the street to Chili's later and most likely will do that for her supper.
She continues to feel very well. Tomorrow the sweet Mr. Grant will pick us up at 8:30 AM and she will have her 9:00 MIBG scan back at CHOP. Then it will be directly to Dr. Maris to learn of the results and to begin the Fenretnide. Sadly, I do not hold any hope in this drug; however, I'm continuing to pray with all my heart that it helps keep this beast stable against all odds. We have a 4:30 flight back home which should have us picking Shayla up from mom and Joe's about 8:30 PM, if all goes as planned.
posted by the Thomas team @ 6:19 PM
6 Comments:
I'll be praying soooo hard tomorrow for that MIBG to show good news and the new chemo to hold this beast back.
Hopefully everything goes as planned and Shayla will soon be wrapped up tight in your arms.
Love you.
hi thomas team,
more prayers your way. lots of them. and fingers crossed.
:)
Good morning girls! Keeping the faith and hope that things will continue to go well. Have a safe trip back to Ohio and know our love goes with you. xoxo Sylvia
Praying as you are scanning and meeting with the incredible Dr. Maris today.
I'm praying that this chemo will somehow, someway keep her stable even if it is against all odds.
I love you all dearly!
Lots of love and tons of prayers for "our" Christi!
Love,
Heather
Praying that everything goes as well as you hope (or better!!) and that Christi continues to find ways to make the best of every situation.
I wish that I had some great words of wisdom to put here, but the only thing that comes to mind is: Psalm 73:26
"My flesh and my heart my fail, but God is the strength of my heart and my portion forever"....
I found this and would like to share it with you.:
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Does God Heal Today?
By Robert Kolar, a believer in miracles.
I've heard people say "It's God's will" or "I'll just leave it up to God" when faced with a serious illness or tragedy. Don't fall into that trap. God wants us to pray to him for help. In Luke 18:1 Jesus told his disciples that they "should always pray and not give up." and then Jesus asked "...will not God bring about justice for his chosen ones, who cry out to him day and night?" Pray to God from your heart for healing. Don't stop. Don't give up. God wants us to ask him for help. He loves us.
Over 20 percent of the Gospel is about the healing ministry of Jesus Christ. Jesus taught his disciples how to pray and heal. He sent them to carry on his work. Wouldn't Jesus want his followers to pray for healing today?
Many spiritual writers have defined the call of healing so narrowly that some people feel they don't qualify. But today a new awakening in faith has made us realize we are not only called into healing for ourselves, but also in various degrees into healing each other.
The Bible actually gives us some directions on how to pray for healing. For example, in James 5:14-15 we are told: Is any one of you sick? He should call the elders of the church to pray over him and anoint him with oil in the name of the Lord. 15) And the prayer offered in faith will make the sick person well; the Lord will raise him up. If he has sinned, he will be forgiven. and in James 5:16 we are asked to "confess your sins to each other and pray for each other so that you may be healed." and then told that "The prayer of a righteous man is powerful and effective." In Mark 11:23-25 Jesus further instructs to forgive when we pray "I tell you the truth, if anyone says to this mountain, `Go, throw yourself into the sea,' and does not doubt in his heart but believes that what he says will happen, it will be done for him. 24) Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours. 25) And when you stand praying, if you hold anything against anyone, forgive him, so that your Father in heaven may forgive you your sins."
Only someone facing or sharing a serious sickness, pain or tragedy knows how hard it is. They know how hard it is to cope with the fear and uncertainty. They know how absurd it sounds when someone first tells them to "keep a positive attitude". They know how terrifying it is when the doubt comes. They know how hard it is to throw a mountain into the sea. But remember what Jesus told us in Matthew 17:19-20 when he said "I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, `Move from here to there' and it will move. Nothing will be impossible for you." Faith as small as a mustard seed sounds a little like hope to me, and that's a good start.
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Boldly - I am praying for you guys.
Dede Taylor
Habitat for Hope Prayer Partner
www.habitatforhope.org
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