Days Before Chemo

After reading the sweetest letter from a dedicated Partner in Prayer, Nancy, yesterday (and crying my eyes out at her kind words) I realize that people are counting on me to update so here goes: Christi has continued to be very active despite some pain over the weekend and I consider that quite a blessing! Thank you for your continued prayers. We are incredibly fortunate; we know of many other children who are suffering horribly right now, not to mention the parents who are forever suffering the loss of their child.

Christi's big art project continues.





A last minute decision over the weekend took us to Eric ("Webby") and Alicia's grand home in Michigan. They rolled out the red carpet for the Thomas team as by treating us to: horseback riding, swimming, the beach, mountain bike riding, great cooking and a bon fire. We always enjoy their company and it's not surprising that Shayne refers to Eric as a brother he always wanted, but never had.

Christi with Kitty
Christi leads "Magic" back to her stall.
Tub Time!
Backyard Bonfire
Eric teases Christi
"I lost my head!"














Yesterday the girls and I were at the convent to see my great Aunt, Sister Mary Alice. My Aunt Marty and my mom also went to visit. Today we are continuing to organize our closets- preparing for school which will start in a matter of days. The girls with Sister Mary Alice (Their Great, Great, Aunt!)
The girls on the grounds of the St. Francis Convent






After beginning her "many horse pills morning and night chemo" (Fenretnide) tomorrow, Christi will have her blood counts checked at ths hospital. They will be drawn from her port in her chest. I didn't update the website over the weekend as Christi had complained of pain in her upper shoulders, neck, stomach area and legs. That really worked me up. (She rarely complains so when she does it really gets our attention. And of course it was the exact areas where she has disease, yikes!) I felt so sick. I now wonder if it was a result of her wild horse riding on Friday because each day since she has said that it doesn't hurt as much as it did the day before. Praise God! Meanwhile, we'll continue to try to pray it all away. Living life on what may be the final moments like we have the past four years causes you to lose a lot of sleep and a complaint of pain sends your mind spinning out of control. Needless to say I'm anxious to see tomorrow's blood counts. PRAYER REQUEST: Platelets up, LDH down. We also pray that this second round of Fenretnide will be more gentle on her tummy.