Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Thursday, August 31, 2006

Fortunes

Christi is checking her email if anyone would like to send her one animalloverchristi@yahoo.com

She is up now working on a creative project; she asked me for a fortune that she could include with it. How did I do?

your life will be judged
not by its length
but by your strength



Well after a day of suffering, a call from her mother turned everything around. She perked up started eating and doing crafts. She will probably be up all night now since she slept most of the day.

Before bed she did her Thalidamide. It is supposed to make her very lathargic. I am anxious to get more anti-cancer meds into her. Our “throw in the kitchen sink” game plan follows.

Here goes:
For pain; 1) extended release morhine 2x daily
2) dilaudid for breakthrough pain
3) stool softner to combat the ill effects of morphin

Anti Tumor Treatment
4) Doxirubicn 1x per week IV
5) Thalidimide-2 pills at bed time
6) low dose Cyclophoshimide starting Friday
7) low dose Etopiside alternating with Cyclo
8) Zometa to ease bone pain investigational for anti tumer effect
9) Oral calcium to balance the calciaum imbalance of Zometa
10) Celebrex 100 mg X 2 day (investigational for ant-angiogenisis)
11) Tricor 48 mg x 2 day (investigational for anti-angioenisis)
Other
12) sski protect the thyroid from the MIBG-one more day
13) Bactrim-who cares not doing it until her counts drop
14) Zophran-for nausea 2x daily


Our current situation reminds me of hiking Camel Back Mountain in Arizona. You drive and drive to get to it, you can see it coming the entire way, there is plenty of time to prepare, however, when you get out and start climbing you realize that it was much harder than you anticipated....

shayne

7 Comments:

At 31/8/06 9:52 PM, Blogger thonmom06 said...

...sniff, sniff....

sorry Shayne...I am emotional... cry at the Master Card commercials, etc... But when it comes to these situations I'm pretty good at holding it together...however, I admit, Christi's first day of fifth grade project of her favorite things, and your fortune...one of those not just a tug of the heart strings, but a grasp.

You did wonderful. Christi and Shayla are so blessed. Enjoy being together tomorrow and hoping and praying the storms do not interfere (PLEASE EVERYONE, PRAY THEY DO NOT INTERFERE!)~ much love to you and we continue to hope and pray. xoxo

....and thank you for sharing all of the beautiful pictures.

 
At 31/8/06 9:57 PM, Blogger HeatherB said...

Shayne:

AWESOME fortune for your princess!!! I'm glad she's eating and doing crafts.

I'm praying for your strength. You are an awesome Daddy!

With my love and prayers tonight,
Heather

 
At 31/8/06 9:58 PM, Blogger Brigid and Celie said...

Hi Mr. & Mrs. Thomas!

You're two of the best-est parents in the whole wide world!

XOXOXO
Brigid and Celie

 
At 1/9/06 7:39 AM, Blogger Jess said...

I am thinking and praying so hard for you all, especially Christi *hugs* She is an amazing person and so brave and inspirational. I have been following her story for a while now. I will be thinking of you

Jess (Plymouth, England)

 
At 1/9/06 7:51 AM, Blogger Lisa said...

I LOVE THE QUOTE.... Here are some of my Favorates:

"At the timberline where the storms strike with the most fury, the sturdiest trees are found."

"And in the end it's not the years in your life that count. It's the life in your years."

"Ultimately we know deeply that the other side of every fear is a freedom."

"When it is dark enough, you can see the stars..."

You are all in our every thought and prayer.

Love,

Lisa and Eden

http://edenadams.blogspot.com/

 
At 1/9/06 10:57 AM, Blogger Unknown said...

I have been praying for Christy and her family for some time now. Prayers that you all are together this weekend and enjoy your precious time together. I pray that Christi is comfortable and able to play today . i am amazed by her her strength and when i find myself complaining i think of her and it puts thing in perspective . God Bless you all .. Jenn

 
At 1/9/06 2:06 PM, Blogger Trine said...

Hey Christi :-) I have send you a little mail,. Hope you get it, and maybe if you want answer! Hugs , Trine

 

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