update
I am updating from my phone so sorry if it is written like a text message.
we finally achieved some pain control tonight. Christi is taking morphin extended release with dilaudid for break through pain. one of the anti cancer drugs is also a pain killer celebrex. she rested well this afternoon and got up and ate like a champ-thanks to the Grant family.
it was a stressful day which included a scan, a depressinf meeting with maris and six trips to two pharmacies. She got zometa IV to help the bone pain and will start thalidimine tomorrow. she is up to 13 separate medicines.
my heart aches for penelope's family. they had a difficult day as well. it is amazing how close you can feel to someone when you are going through the same shit at the same time. please visit her in christi's clubhouse and send them positive thoughts. they love their child so much...as we all do.
hopefully tomorrow will be a turning point and we will wake to a new day. I am beat.
special thanks to those back at the bank cleaning up my messes.
I hope to be in a better position tomorrow to interact in business.
Christi still has a twinkle in her eye. she is frustated yet determined to continue to live her life her way. each new person we meet tells us that we look exactly alike. I wish I could take her place like an identical twin prank...
thanks for checking
shayne
6 Comments:
GO CHRISTI!
You and your Daddy make a great team! We're praying all night.
XOXOXO
Brigid and Celie
Dear Shayne and Christi,
Thanks for taking the time to update the blog for all of us.
I'm glad that Christi's pain seems better controlled tonight. I'll be praying that the pain control will be good for her.
I'll also add Penelope and her family to my prayer list. What a horrible disease this is.
Sending you all my love and prayers. Please give Christi a hug and a kiss from me!
Lots of love and prayers,
Heather
Just speechless.
Storming heaven with prayers...FROGing...Praying without ceasing...
With love, tears & e-hugs,
Jennifer
Hi,
This isn't really meant as a public comment but just as a note to you that undoubtedly cannot make you feel any better but needs to be said -- I just wanted to let you know that I've been quietly reading this blog for something like the past year, having been alerted to Christi's story through a friend, and she's inspired me to become a live kidney donor, because just like how blood is "in donors to give", I don't need two kidneys, and while it doesn't sound like someone with failed kidneys can have a rougher time than Christi is having, it makes a difference.
Thank you for having the courage to post.
Good morning Shayne and Christi...
Hope everyone got a good night's rest last night. xoxo
Thinking and praying for you
The
Erickson Family
[IMG]http://i6.photobucket.com/albums/y217/supermom1018/thumb_BabyPiglet2028129.gif[/IMG]
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