Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Monday, September 25, 2006

Reality Arrives

Thanks to the Advertisr-Tribune for sending me this picture this morning. It was on the front page of the newspaper yesterday. What a send off; so sweet!

So today the reality of the fact that beatuful Christi is really gone is beginning to hit. Last night Shayla and I were trying to get to sleep in our bed. For a very long time, she was really wiggly, but she didn't want to talk and then she disappeared. I gave her a few minutes before setting out to look for her. I found her tucked in and weeping in Christi's bed with the covers pulled up over her head. She's missing her big sister terribly, as we all are. Yesterday in church Father asked the children what nice things they could do for their brothers or sisters. I felt like I had been punched in the stomach as my tears fell down on top of Shayla's head knowing her sister is in Heaven and she's going to be stuck with these brother/sister questions for the rest of her life.

Much to my shock, Shayne returned to work this morning and Shayla returned to school. I don't know how they did it. Everyone has told us this is when it just begins to get hard. I just look at Christi's brand new bookbag sitting here and I can't stop crying. School was a place where we were all safe; something we all did together, a place we all loved. How can I even walk into that building without Christi beside me? The week they were in Philadelphia and I was back at work there was a fire drill. As I reached out to close my classroom windows prior to vacating I saw Christi's class marching down the sidewalk and it literally took my breath away. I can't imagine seeing her class and knowing she's not just in Philadelphia; she's really not here at all. Her classroom was directly below mine this year and we would tease each other that we were going to pass notes up and down in a bucket. How we both adored her teachers and knew she was going to have a great year. That week Christi & Shayne were in Philly Shayla came up to my classroom after school as that's what the girls do (typically playing "school", until I finish up) and Shayla asked, "Where's Christi?......Oh, I forgot." I'm so fearful that will happen again. I'm so fearful that no one will mention Christi's name as they'll be afraid to upset me, when there's nothing worse than thinking people have forgotten her already. A couple of weeks ago the Labor Management Committee decided they would be putting me on an unpaid leave (FMLA) so I know I must return to work as the bills which haven't stopped for the past four years won't for many, many months so I've been told. Additionally, my insurance and retirement are being affected adversely as a result of not being able to work yet, but I'm just not certain when I will be emotionally able to do that. I know I must be able to have control of the situations in my classroom and right now I don't even have any ability to control my own body. I just look at a box of Christi's breakfast cereal or her handwriting on a paper she left around the house and fall apart.

32 Comments:

At 25/9/06 9:20 AM, Blogger Land family said...

What a beautiful picture that is. Nobody will be surprised if you need time to prepare yourself for teaching again. You have been on an emotional roller coaster for so long, your body needs time to heal too. Take care and know that those who won't mention Christi are trying to protect you. There's no way that little angel will be forgotten.

 
At 25/9/06 9:22 AM, Blogger HeatherB said...

Dearest Angela,

Praying especially for you all today as the harsh reality of Christi living in Heaven hits.

Oh how my heart breaks for all of you, for Shayla as she misses her big sister. And for you and Shayne as you try to continue your lives without her there in your arms.

I love you all dearly.

I'm praying and holding you all close to my heart.

Lots and lots of love and prayers,
Heather

 
At 25/9/06 9:34 AM, Blogger Kryd said...

=( God Bless you Angela. I hope you start feeling better a lot better, sooner then later.

There are no words to describe the pain you are in right now, or how sorry I am for what you are MADE to go through for a sad reason.

God Bless you Angela, I'm thinking of you always..=)

 
At 25/9/06 9:35 AM, Blogger Kryd said...

=( God Bless you Angela. I hope you start feeling better a lot better, sooner then later.

There are no words to describe the pain you are in right now, or how sorry I am for what you are MADE to go through for a sad reason.

God Bless you Angela, I'm thinking of you always..=)

 
At 25/9/06 9:38 AM, Blogger HA5009 said...

Oh Angela,
Please know so many moms out there are praying for you. I would give you a hug if you weren't on the other side of the screen.

Heather

 
At 25/9/06 9:39 AM, Blogger Kim said...

Oh Angela - please know that Christi will never be forgotten - I can promise you that! And Christi is giving Shayla a special gift - she is watching over her and keeping her safe. Big hugs to all of you today!

 
At 25/9/06 9:42 AM, Blogger Holly said...

Angela, I'm thinking of you and your sweet family this morning. What a beautiful send off Christi had! Please know that I will be keeping all of you in my prayers. I will never forget Christi. I first learned of her as a Special Assignment Angel for Chemo Angels, but she was the angel! I never met her in person, and yet, like she has so many others, her life has deeply affected mine. Thank you for sharing her with so many - sometimes such a cherished jewel is hoarded. I cannot imagine a life more well lived and well celebrated than hers. It makes me examine my own more closely and try to make better use of such a blessed gift - what a great legacy - she taught us all how to live! She could not have accomplished this without her wonderful family. You have given everything it was possible to give and now you need to give yourself some time. She lives on in the memories of everyone's life she touched, and I believe she will find a way to help you find comfort. She was so remarkable - and so are you and Shayne and Shayla!

Lifting you in prayer, Holly Hart

 
At 25/9/06 9:58 AM, Blogger Rebekah said...

Angela ~ I am SO sorry that this is the new reality for your family ... my heart breaks for Sweet Shayla ... My sister had cancer when I was just 6 and the feelings of loss are without words ... something you can never explain unless you have been through it ... I will not even pretend to know how you feel - I don't and pray I never will ... no parent whould have to bury their child EVER! But please know that I talk about Christi to people who don't even know who she is ... my 4 year old and I look through her photos and smile ... she asks who is that girl and I tell her ... we prayed at night for her healing and we continue to pray at night for yours (though the healing will never come fully and it shouldn't!) ... your daughter will live on in so many of us ... her spirit will fly free above and watch over all of us and I will FOREVER thank her (and you too!) For being so strong to share her life and death with all of us ... I rack my brain at night trying to come up with a fitting way to memorialize her and I am getting there ... PLEASE PLEASE know that her name will be spoken for years and years to come ... the Amazing Christi who ultimately won the battle but sadly you are left to finish the war ... God Bless you Angela!

Rebekah Clark
Prior Lake, MN
mommy_jaden@yahoo.com

 
At 25/9/06 9:59 AM, Blogger Alison Haddock said...

The grief of a mother in the early stages are so painful, and it is so hard for anyone who has not endured it to ever comprehend. It is simply the worst emotional and physical pain one can experience. For months your mind plays tricks on you. You honestly believe at times that you will simply "wake up" from this horrible nightmare. It takes a great deal of time for the complete reality and the enormity of the situation to even sink in. The shock seems to wear off slowly. I believe this is a self-preservation mechanism orchestrated by God. He knows we could not handle it all at once.

My prayer is that during this most difficult time you are surrounded by the many people that Christi touched in her life and that you feel the love radiating from them. It will give you comfort on your darkest days.

I have given Christi's website to some friends' of friends' here in St. Louis who lost their child last week as well to NB. I am hoping that you all will be able to support eachother in some way.

Lifting you up in prayer-
Alison Haddock,
mom to Angel Alexandria

www.caringbridge.org/page/
alexandriasangels

 
At 25/9/06 10:04 AM, Blogger Kaivalya said...

The first morning after Christi was gone I had a tearful moment as I said my morning prayers. For so long I've been praying for Christi's health and recovery - it felt deeply sad to instead be praying for her soul and, of course, for the strength and healing to all of you.

Angela, I said a special prayer for you this morning - I asked God to grant you courage and healing as you face this biggest loss of your life. No mother should have to endure what you're going through - I can't imagine your grief. Take all the time you need to care for yourself and heal.

There is one thing you can be absolutely, positively certain of: Christi will *never* be forgotten - not with so many hearts full of her memory - including mine.

Love and blessings to you and your family -
Kai

 
At 25/9/06 10:39 AM, Anonymous Anonymous said...

SHAYLA SWEETY I KNOW HOW MUCH YOU MISS YOUR BIG SISTER CHRISTI.MY HEART GOES OUT TO YOU HONEY.CHRISTI IS NOW WATCHING YOU FROM HEAVEN AND WILL ALWAYS BE WITH YOU IN SPIRIT.YOUR FAMILY IS IN MY THOUGHTS AND PRAYER'S ALWAYS.THE JOURNEY YOU NOW BEGIN WITH ANGEL CHRISTI WATCHING OVER YOU FROM HEAVEN IS GOING TO BE HARD BUT YOU HAVE LOTS OF FRIENDS AND CYBER SUPPORTER'S WHO ARE HERE FOR YOU TO LISTEN.WE LOVE YOU ALL AND CHRISTI.CHRISTI WILL FOREVER BE IN OUR HEARTS SHE WAS AN INSPIRATION TO SO MANY.SHE FOUGHT A LONG HARD BATTLE BUT NEVER GAVE UP.SHE WILL LIVE ON FOREVER IN OUR MEMORIES AND NEVER BE FORGOTTEN.

 
At 25/9/06 10:50 AM, Anonymous Anonymous said...

The Cord

We are connected,
My child and I,
by An invisible cord
Not seen by the eye.

It's not like the cord
That connects us 'til birth
This cord can't been seen
By any on Earth.

This cord does it's work
Right from the start.
It binds us together
Attached to my heart.

I know that it's there
Though no one can see
The invisible cord
From my child to me.

The strength of this cord
Is hard to describe.
It can't be destroyed
It can't be denied.

It's stronger than any cord
Man could create
It withstands the test
Can hold any weight.

And though you are gone,
Though you're not here with me,
The cord is still there
But no one can see.

It pulls at my heart
I am bruised...
I am sore,
But this cord is my lifeline
As never before.

I am thankful that God
Connects us this way
A mother and child
Death can't take it away!

 
At 25/9/06 11:28 AM, Blogger Jennifer Saks said...

Angela,
I've been so caught up in the events of the past couple of weeks...Christi has been part of my life since the week she was diagnosed. I can't even remember how I got connected, but I think it was through someone else I know who has a CaringBridge site for their special child. I don't think I ever contacted you, though, until I was diagnosed with breast cancer and had some "helpful hints" re: nausea, etc. for Christi.

As I've told you, we lost a child--Nathan lived for 14 miraculous years, after we were told he would not see his second birthday for sure, and probably not his first, due to an extremely rare genetic disease. I thought that was the worst thing I could ever imagine. But then we learned to live with the disease. We loved him so, so much, and considered every day a miracle. He taught us so much, and our faith and our love for God and one another...and for our 3 children...grew and matured in ways that it NEVER could without the traumatic events in our life.

And then Nathan died. NOW I knew I had discovered the worst thing I could imagine. I knew God had gotten me through those 14 years, and I loved every minute of it. But I couldn't see how He could accomplish the same thing through Nathan's death. My husband, Kraig, is the most loving and supportive husband there is. And our other two, Emilie and Matthew, were so loving and caring. But we ALL were grieving, and we each had our own things we were dealing with. For me, it was suddenly "who am I?" Fourteen years had been taken up with 24 hour care for a totally helpless little love of a boy, and suddenly now I was not needed...not by him, anyway. The suddenness and power of that event took my breath away, and I didn't know if I could survive. Kraig says it took me about 4 years before I was "normal" again. (whatever that is--we achieved a new normal after Nathan's birth and again after his death). I tried my hardest, and I think I did fine as a wife and mother on the "outside"--our family didn't go hungry or lack for clean clothes, and we made it to their school events, etc. But on the inside, I was dying. Over time, God ministered to my heart in various ways, and I realized I WAS going to live...just not sure if I wanted to! For many weeks I sat in church with tears dripping down my face as we sang, remembering how Nathan would coo and crow during the music. Friends were so good to talk with me about him, and not let his name be unmentioned. But the lonliness was extreme.

I tell you this just to say...be good to yourself, Angela. This is going to take a long time, and maybe work would help...but maybe it wouldn't. There will come a time when you know it's right to go back. But until you really start desiring it, try to do something else. Maybe you could do some individual tutoring or something...
just to stay a little busy...but not have to be in the school? For awhile it's going to be more than hard for you to be there, but eventually that will probably be where you WANT to be. The associations with Christi will start to feel very sweet...remembering how much she loved being there will bring you comfort. But until then, do what feels right. Trust the Lord in your life. Do you have any friends who are home during the day? Could you meet for coffee...prayer...Bible study or just talk? You need people, but you also need solitude to start dealing with the new situation you find yourself in. I'm starting to really ramble now, so will sign off..but if you ever want to talk or vent or ask questions...I'm here. I know you know a lot of other moms in your situation, more so, even, since they also dealt with Neuroblastoma. Maybe they will be of special help to you right now.
Please know that I continue to pray for you all. Christi's sendoff was so special, and really fit for the princess that she was! Remember, you WILL see her again.
Love, prayers and hugs,
Jennifer (in Oregon)

PS Does your community have any sort of support group for children who have lost a sibling? Ours has a very good one, but our kids didn't want to go...they felt funny about the idea. But maybe Shayla would benefit from something like that. Our kids DID talk with the counselor at their schools some about what they were going through...Emilie was in all accelerated classes and we saw her grades plummet for awhile after Nathan's death, and again later in college she went through a period. Our pediatrician told us they would probably continue to go through different phases of grief for their brother, probably even until they have their own children. Makes sense. Just something to think about re: Shayla...

 
At 25/9/06 11:38 AM, Blogger Jennifer Lehmann said...

Huge e-hugs to you Angela! Love you!

 
At 25/9/06 11:56 AM, Blogger Cindy said...

Oh how my heart just weeps for you and your family. I was blessed to find this journal about a year ago.And have been following her story since then. I feel like I have lost a dear friend...one I never met. But touched my life deeply. When she was sick and nearing the end, I thought of my mom and what we went through almost 2 years ago. It was like I was living it all over again.I lost my mother, my best friend...but it's nothing like losing a child!I want to thank you for sharing her life with us..the good, the bad and the ugly.
The hardest part is when the last person leaves and the door closes. Like this morning, that's when reality hits and it hits hard. That's when things return to normal, even though things will never be "normal" again...everything changes and nothing but time will heals the wounds that are so deep and so fresh. Christi was and still is a huge inspiration and will NEVER be forgotten. It's up to all of us to let her legacy live on. On Sept 20th at 7:30pm I light a candle in honor of Christi at Light the Night celebration in DC. It was done to honor and memorialize our loved ones and friends that have had their lives touched by this evil disease.
Take time to heal, take time from work if you feel you need to.There are many stages to grief and they don't happen on a schedule.But when they do happen, embrace them for it's all part of the healing. Some people, like my dad, went back to work right away. Over the following months he would take a day off here and there...when he felt like he needed a break. Some say the first year is the toughest, a year of firsts without your loved one. Others say the second year is even tougher...I'm finding the second year to be the toughest so far. I still talk about my mom and won't let anyone forget her. I still celebrate her birthday and my parents anniversary. She is not gone...she is changed. And I know that she is with me every day and if I want or need to talk to her...I just do..and it has helped so much.
You have so many people that love and care about you and your family. I know I have been so deeply touched by Christi that I will never be the same.
Take care and God Bless!
Much love,
Cindy

 
At 25/9/06 12:06 PM, Blogger MaryH said...

God love you and thank you for sharing so much of the past several days with your Christi - she will not be forgotten - that would be impossible!- I thought you might get some peace from reading the below story....I found it on another site -

Sand Fleas
written by Susan Larson


“The death of a child takes you places you’ve never been before, not only in terms of emotions, but in terms of awareness of all that is. I liken the experience to playing on the shore with your friends and complaining about an occasional bite from a sand flea. It’s painful and annoying, but at least everyone else understands how you feel when you’re bitten.
Then one day, a wave grabs you and pulls you out into the ocean where you are bitten by a shark. You feel pain you never imagined could exist. And you’re alone in unfamiliar territory. When you get back to shore, you try to explain your pain to your friends, but the worst pain they can imagine is being bitten by 1,000 sand fleas. That’s all they know. There is no way to explain it to them.
But it’s not just the pain you can’t explain. While struggling under the water you’re suddenly aware that there is infinitely more to life than what we see on the shore. You see the ocean floor with coral reefs and rock formations, things you had never before imagined. You have tapped into the vastness of creation to a higher degree. And again, there is no way to adequately describe this vastness you see and feel. You have nothing to compare it to.
You have a true sense of a greater dimension, and you know that the loved one you miss is out there. You also know your loved one is not lost, but has only gone before you to a place more beautiful and vast than those on the shore could ever imagine. Yes, you still get annoyed with the sand fleas, but you now realize how trivial they are. And even if your friends don’t understand you, you know there is Someone greater out there who does.”

 
At 25/9/06 12:28 PM, Blogger The Rees Family said...

Angela ~ please know that so many people are praying for you all. It will be hard, but Christi gave you so much strength. Also knowing how much people care about your whole family. Time will ease your pain.

Wonderful story on the news this weekend. Being in NW Ohio we get the Toledo news as well.

Take care, I continue to say prayers for you all and check your blog daily.

Julie Rees
Napoleon, Ohio
jbrees224@earthlink.net

 
At 25/9/06 12:28 PM, Blogger The Rees Family said...

Angela ~ please know that so many people are praying for you all. It will be hard, but Christi gave you so much strength. Also knowing how much people care about your whole family. Time will ease your pain.

Wonderful story on the news this weekend. Being in NW Ohio we get the Toledo news as well.

Take care, I continue to say prayers for you all and check your blog daily.

Julie Rees
Napoleon, Ohio
jbrees224@earthlink.net

 
At 25/9/06 12:30 PM, Blogger Eugenia said...

That photo looks so wonderful, I wish I could have been there to see everything in person. I'm sorry to hear about the unpaid leave situation, I can only imagine the added stress. Thank you for sharing the photos and memories about Christi's celebration of life. They continue to show me more and more about what a lovely and beloved person she is.

 
At 25/9/06 12:37 PM, Blogger JanetPG said...

Holding you in prayer today.

Janet

 
At 25/9/06 1:36 PM, Blogger ditzymoi said...

Christi was a beautiful child and now a special angel. I can only imagine your pain.
When my father passed away I remember wanting the world to stop rushing by, my life had changed so drastically and I couldnt imagine facing it without him in it.

I wish there was something I could do for you and your family ... Im so very sorry.

 
At 25/9/06 3:08 PM, Anonymous Anonymous said...

Perhaps she could have a "Christi Journal". Instead of a "Dear Diary" She could share all her thoughts and secrets. Pain and anger.

I hope you find some peace and comfort, somehow. I know you will never mend your broken heart but,
I also wish for you the strength to return to school. I dont even know you Angela, yet I worried about you home today, alone all day with all that pain.

 
At 25/9/06 5:34 PM, Blogger Amy said...

I have been reading only for a few weeks, but I wanted to let you know that I have been praying for you all and will continue to do so. I can't imagine the roller coaster of emotions that you have been feeling.

 
At 25/9/06 6:36 PM, Blogger Lisa Krenz said...

Angela,
Thank you for sharing the link to the video that was on the news. Since i could not be there in person, it was great to see some of Christi's memorial.
Take all the time you need. There is no greater loss than the loss of a child.
I am thinking of all of you all day long and praying that you can lead a (somewhat) normal life again for Shayla's sake.
Thanks again for sharing all the photos on the blog. Christi actually looked like she was smiling in the photos you took of her in her final resting place.
God's Light & Strength Be With you ALL
Lisa Krenz

 
At 25/9/06 7:20 PM, Blogger Melinda Auld said...

it's okay angela. you just take all the time in the world for yourself right now. everyone who goes through what you've been through needs time, and to find their new path in their own way. just know that we are still here for you, holding your hands, and that we will NEVER forget your beautiful daughter, Christi.

 
At 25/9/06 7:46 PM, Blogger Brigid and Celie said...

We Love You, Thomas Team!

XOXOXO
Brigid and Celie

 
At 25/9/06 9:40 PM, Blogger Kait said...

Angela,

I cannot offer you any words of comfort, only my love and prayers. I wish I could give you a hug. I do want to assure you that your sweet girl will NEVER be forgotten. She will live on in the hearts and minds of thousands.

 
At 25/9/06 10:52 PM, Blogger Naomi said...

I have been hesitant to leave a comment for some odd reason. I am so drawn to, pulled to the comments section, even push the button...but then click the 'x'. For some reason, I feel that if I leave a message, then I am facing the reality of her death.

Though I have never personally met Christi...or your family...I feel so close to each of you. I guess that is what happens when you read the posts and pray continually (daily) for a precious child for many years. When she died I felt as if one of my own children died. I only want to believe that this is just a story that I read in a sad book, or the ending of a sad movie...that she is still happily snuggling with Buckeye, painting beautiful pictures, or reading her favorite stories!

However, today I realized I was being selfish. I need to let you know how amazing her life was and how drastically she touched so many!

I wanted, with all my heart, to attend her services! It wasn't possible though, but I have one small request. Would you please give Shayla a hug for me? I also lost 2 younger sisters and can feel the pain grip at my herat daily!

Always remember that in those quiet moments, when that pain is too hard to bear, that you are held in my gentle thoughts and prayers!

 
At 25/9/06 11:29 PM, Blogger daisy said...

Dear Angela, Shayne and Shayla,
I found a link to your website from the caringbridge site of one of my friends' sons, who is ill but recovering. I spent two hours reading your blog and learning about your sweet Christi and her wonderful little sister Shayla and the love in your family and I am so moved. Our area (MN) suffered some tragedy recently with the loss of a ten year old girl in a tornado. Our pastor was asked how we should be talking to God at this time. Should we thank Him for the good things we have, blame Him for the bad things that have happened or beg for Him to spare us any further pain? Our pastor really couldn't answer. He did say that talking to God in times of pain is the most important thing; more important than WHAT you say. I hope that you will keep up your conversations with God, no matter what the tone, and trust in Him. I wish I could absorb your pain for you across these miles and take some of the hurting away. In one of your entries, you said the hardest part of mourning will be months down the road when people act like nothing ever happened. I promise from now on that I will never allow myself to forget when someone I know has suffered a loss such as yours. Please give a special hug to that amazing little Shayla and tell her that there are many people praying for her. God bless you and God bless beautiful Christi up in heaven!

 
At 26/9/06 1:59 AM, Blogger Stefanie said...

I hope you find the strength to want to go back to work. I know the feeling : bills building up they never stop! I wish you the best. Not a day has went by that dont think about Christi. I wake up and check the blog every day!:)

 
At 26/9/06 2:47 AM, Blogger Tiiu said...

Dear Thomas Family,

send my condolences
Maybe this book will be of help to You.

http://www.luuleviilma.ee/?lang=en

 
At 26/9/06 11:59 AM, Blogger Sabrina_Sherick said...

Angela,Shayne,Shayla,and Christi,

You are all in my thoughts and prayers everyday.

Angela,Shayne, and Shayla:

you miss christi physically but she is still, LITERALLY, with you everyday and EVERY MOMENT! I'm sure of it.

With Love,
sabrina

 

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