Top 10
Christi just sat up and snuggled into the chair with me to watch cartoons for about an hour. She ate Coco Pebbles and two yogurts. For the most part she was her charming and witty self-just weak. Her pain is under control and when she rests she is comfortable. This can all change very quickly or can linger like this for days or weeks-we just don't know.
For those of you who mistake me for a good and compassionate father I have included the following top ten list to change your perception. For those who know better you won't be surprised (right Aunt V?)
Shayne
Top ten insensitive things Christi's Dad said this week.
When asked how many cats she had Christi replied "Two" and I added
10) "many"
9) I'm going to give these stuffed animals to gypsies
When Christi was sitting on the toilet and decided to blow her nose.
8) You're confused and wiping the wrong end.
Waiting for Angela to come read to her at radiation
7) Your mamma is sooo big....she's on both sides of the family (see May's Blog)
When Christi was on the stretcher going to radiation
6) She'll be fine going down the ramp by herself .......it will be the sharp turn at the bottom the gets her.
When the elevator stopped on the wrong floor and we started pushing Christi out the door....
5) Floor two! this is where you get spade and nutered (Christi actually laughed at that one)
4) I am going to invent shock collars for the nurses that are triggered when the IV pump alarms. ( I said these were insensitive)
When the Chief Operating Officer of CHOP asked if their was anything they could do..
3) Can you get Maris a better parking spot?
When planning for the perpetuation of Christi's cancer for a new cell line used in research, I came up with this name..
2) FU NB 2006
1) Are you gonna eat that?
posted by the Thomas team @ 10:24 AM
7 Comments:
Shayne, you are a loving and compassionate father with a sense of humor! xoxo
you are not insensitive! you're human! much love, patience, peace being sent in your general direction!
Amen to FU NB2006 !!
Sounds like Christi got her sense of humor and timing from you Shayne. Glad to read she had some nice snuggle time with you this morning. She is an amazing young lady!
Still praying for one last miracle.
- Melissa B
---(----@
I'm sorry I have no words.....
Only prayers & tears for all of you.
I guess we know now where Christi got her wonderful sense of humor! You are a great dad. We are praying for you all.
go shayne! and you're right - FU NB 2006...and all the years beyond!
your grace under fire is inspiring, uplifting and courageous. and christi seems to have inherited her wonderful sense of humour from her loving daddy.
As much as we love our nurses there are many times at 3 in the morning I would have gladly funded the shock collar. But my favorite by far is #2; in fact I say that exact phrase 10 times a day (In my own head). But some days I want to scream it to the world.
Your strength and humor is what will get you thought this! Christi loves to make people laugh and it is my belief that after she is gone every time you laugh you will feel her close by.
I think it is so wonderful what you are doing with the research. It is because of so many children before ours that we have come this far and our children will hopefully bring children of the future even further or maybe even beat the NB Monster! With what you are doing it proves there is still plenty of fight left in you and you are not ready to be defeated even after losing one of the bravest warriors. Have faith and someday we will all understand the trials we must face here on earth.
I pray for peace and strength for you all and for sweet Christi’s soul.
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