COSI Connections

Christi (with the help of some Zofran) quickly took control over this morning’s nausea and after that was conquered she has continued to feel very well all day. As you can see, Jenn and Traci’s COSI friend (Reptile Ryan) arranged for us to visit Lyndsee and her tree frog exhibit at the Academy of Natural Sciences this afternoon in chilly Philadelphia. We even were treated to a “behind the scenes” tour and Christi enjoyed herself throughout the entire museum – a fabulous place. We all came back to this wonderful Ronald House exhausted – well, all except Christi.

“Harriet” and “Elizabeth” continue to provide much entertainment and distraction and their presence has allowed me not only to update this blog, complete the laundry and get groceries without subjecting Christi to frigid temperatures, but I also started and finished a book highly recommended to me by one of our dear Angel friends, Mary (Simon’s Mon). It was called “Shelter from the Storm: Caring for a Critical Ill Child”. I thought it best to read this book while she was doing relatively well versus a time when panic and emotions run high. It was great for a preparation which I hope to never need.

After tomorrow’s round of “The Cyclone” (if Christi continues to feel well) we shall use our COSI membership to obtain free admission to the “Franklin Institute” (Philadelphia’s science center). I can’t even explain how nice it is to have sweet Jenn chauffer us around this lovely city.

Tomorrow we shall see Dr. Maris. While I’m grateful that her cancer responded to this latest cocktail, I know that’s typical of Christi’s disease and I also know that it is not durable. My questions for John will center around “what’s next?”.