Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Thursday, February 23, 2006

Platelets & Wigs



The girls are busy playing with their American Girl items so I'll put up a quick update:

When I went to wake Christi up this morning, I was caught off guard by all the dried blood I saw on her pajama top. It never dawned on me not to leave her port accessed with low platelets overnight. Ugh. Upon taking off her top to get her into fresh clothing to get to the hospital, I looked at her saturated covering and smeared blood. I was thinking that she could have bled to death while she was scared inquiring, “Do I have to get another needle in my chest today?” I don’t believe in 3 ½ years that I’ve ever been squeamish regarding Christi’s situation (others, yes, but not her) but this morning I too was uneasy looking at what had happened on her chest. Yuck!

The platelet transfusion went off without a hitch and the wonderful nurse cleaned her all up and I was greatly relieved that all was fine – just low platelets with a needled left in overnight. I asked Christi if she wanted to go to the beauty school and get our nails done before picking Shayla up at school, or to do a little shopping and she said she just wanted to go home and take a shower.

At home, we did a “little” art project. (OK, OK, where is her wonderful art teacher when we need her?! Hee hee! Just joking, Sue!!) The “Locks of Love” molding kit arrived so we watched the video on how to do it last night. Today we prepared her mold to send back for her wig. It was a HUGE mess and took a VERY LONG time. When I got out the Crisco to grease Christi’s little bald head (after shaving the fuzzies off so that the plaster didn’t stick to her scalp) Christi said, “What? You’re going to put vegetable oil on my head?” I told her we didn’t have any Vaseline and I called Grandma Nonee and that’s what she suggested. Then the little stinker burst out laughing and said, “I know. I watched the video with you, remember or now do you think I’m a vegetable?” So to keep her head straight and still and to keep her from talking I plopped her in front of the computer while I got to work. Later while Christi was in the bathtub getting the blue marker, Crisco, and plaster off of her head she sweetly said, “Ya know mom when we did that mold of my head today? It really was kind of fun, except when it really hurt when you had to peel if off, but if I forget about that part, it was fun.” (What a sweetie!)

Southwest Airlines had the cheapest flights this time ($342.0 per ticket) so our flights are booked. We leave Sunday morning and shall return on Saturday (for about a week).

Her tummy is still tender, but I do think better! Thank you for working overtime, dear prayer warriors!

16 Comments:

At 23/2/06 6:28 PM, Anonymous Melissa said...

Christi - looking good, hair or no hair. I have all I know praying for you and we won't stop until you're better! I hope that you get to go to school soon, I'm sure all of your friends miss you! Do you know if they are going to use Tiffanys hair for your wig? How cool would that be! Keep being brave and I hope your next stay at CHOPS goes well for you!!

Melissa in NJ (one of your Heidelberg fans):)

 
At 23/2/06 6:33 PM, Anonymous Anonymous said...

Angela,
Your daughter is AMAZING..what a beautiful, brave, funny girl!! Much love and MANY prayers from your Cape Cod friends.
Love,
Beth

 
At 23/2/06 6:33 PM, Blogger Angela said...

Dear Angela, Shayne and family,
Oh dear, it must have been a shock to find all the dried blood, I hope it won't happen again.
I think the photo's of Christi's bald head are lovely, she is beautiful without hair too! Funny how a bald head looks so nice on some people!
Still sending prayers for Christi's counts to improve and a cure for her to be found.
Take care,
Love Angela

 
At 23/2/06 7:05 PM, Anonymous Ashley said...

You know...there is something stunningly gorgeous about the picture of Christi with no hair...she is beautiful!

Prayers from Boston,
Ashley

 
At 23/2/06 8:11 PM, Blogger HeatherB said...

Oh my goodness that sounds like quite an ordeal with the wig mold.

I'm glad she was able to get her platelet transfussion. She's definilty a sweetheart!

Glad you got your tickets booked for Philly- at a much lower than $500 per ticket price.

I'm praying, and loving!

Lots of love, tons of prayers,
Heather

 
At 23/2/06 8:51 PM, Blogger Jennifer said...

Christi is looking so beautiful and happy--with or without her hair. I was so happy to read about her LDH and ANC yesterday!! Great news! The Lord is amazing. I'm glad that Christi is still taking the loss of her hair very well. I'm hoping she keeps that amazing attitude and is eager to get her new beautiful wig. I'm glad you are having a good few days, despite a few bumps.

Love & Prayers Always,
Jennifer

 
At 23/2/06 10:18 PM, Anonymous Eliza, san fran said...

Bald is beautiful!

Christi, I don't believe I've ever seen a more beautiful person without hair. Just needed to let you know that.

I can imagine you're excited about your wig but I hope you know how incredibly beautiful you are inside and out, top to bottom and all around - and no wig will ever do that justice.

Sending lots of ((((((((((((hugs))))))))))))))) and holding the hope,
Eliza

 
At 23/2/06 10:51 PM, Anonymous Anonymous said...

Hi Christi!
I am loving the new look and your new hair should be just as cool! You definitely have a very cute bald head there! I'm really sorry about the blood, that must not have been fun at all but hopefully the platelets will improve things. You are such a funny, beautiful little girl and my 12 year old sister who is also fighting cancer is very inspired by YOU! I'm sure that your wig will look awesome. That would be sooo cool if you had my hair in it (I donated 14 inches a while back, close to your hair colour!) Hopefully your tummy will start feeling better soon and that you keep having lots of fun with Buckeye!
caringbridge.org/visit/julie
-Caitlin

 
At 23/2/06 11:15 PM, Anonymous Anonymous said...

Saying extra prayers as I head of to bed this evening.
Megan in NC

 
At 24/2/06 12:05 AM, Blogger Cheryl Scott said...

Wow, you had yet another busy day!!!

Christi, you are such a delight and it shines through in every way, especially through your lovely face! I'm sure you'll be happy to have a wig to wear if you wish...but, trust me...you look beautiful without one!!!!!

Sorry to hear your day started out so scary!

It's a relief to know that Christi has been improving...will pray for his trend to continue!

Hugs to the whole Thomas team...

Cheryl Scott

 
At 24/2/06 1:11 AM, Blogger Rhonda Dudley said...

I dont know if ive just gotten used to bald heads or what, but I think she is just the prettiest little bald headed sprout around!! Nope, its not that ive just gotten used to bald heads... Shes just plain pretty no matter what!!!
Thinking about you guys as you prepare to go to Chop.... take care

www.caringbridge.org/tn/sydneymarie

 
At 24/2/06 1:26 AM, Anonymous Ellen Hanson said...

Hi Guys, I'm so glad she is feeling a bit better. The needle in the port never would have occured to me either, and I'm a nurse! Yikes. Glad it was all OK, and I'm so happy to hear about the LDH. Continued Prayers, for all of you! Love, Ellen

http://www.caringbridge.org/ma/seanhanson-MRI was good!

 
At 24/2/06 8:12 AM, Blogger Brigid and Celie said...

You look beautiful, Christi! Have a really fun day! We love you!

XOXOXO
Brigid and Celie

 
At 24/2/06 9:50 AM, Anonymous Anonymous said...

Christi, Cami thinks I am totally nuts, but this afternoon I am shaving my head! I am doing this to show my support for two extraordinary fighters...you and my cousin Sally. I have been thinking about it for a while, but recently it has been very much on my heart to do this. I will send you a picture of my bald head soon! Ms. Fannin

 
At 24/2/06 7:11 PM, Anonymous Anonymous said...

We are your "angles workin overtime"

 
At 25/2/06 9:40 PM, Anonymous Jen said...

Christi, you look so beautiful with your new un-hair-do that I wouldn't be surprised if you started a trend!

 

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