Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Saturday, February 25, 2006

Preparing for Departure



We are happy and most grateful that Christi continues to feel well!! She was invited to do some ceramics with one of her best friends, Kaylyn, this afternoon bringing her a lot of joy.

Today was one of errand running for me as we are Philadelphia bound - flying out early tomorrow morning. I was able to catch sweet Tiffany (a Heidelberg College student and daughter of my dear friend Lori) as she had 13 inches of her gorgeous hair cut at the “Head Shed”. It will soon be mailed off for “Locks of Love”. What a sweetie!

Dr. Maris has “firmed up” some plans for us. He feels Christi needs to remain in Philadelphia so that she can be close to the hospital and to his care when the need arises (weeks of chemo, nutripenic hospitalizations, blood transfusions, etc.). He believes that we were “very lucky” last time, when her ANC was zero (no immune system) that she didn’t get an infection and that I got her to CHOP just when her fever started. It would be very dangerous not to be so lucky in the future; therefore, Shayne and I have agreed to his advice and we will be spending a longer time than we had hoped in the city of brotherly love. (Of course I didn’t know this when I purchased our tickets so we will be flying home late Friday night.) But now we will only be home about 4 days because we have purchased one way tickets back to Philly on March 8th. (Yes, that “one-way” scares me a bit, yet I know we will get home – sometime.)

When I told Christi of the change in plans (that we’d be gone one week, home for 4 days, then gone for a long time) she just asked if she’d be home for her 9th birthday (May 12th). I told her that I didn’t know, but that I hoped so and if not we could probably get some of her friends to come to Philadelphia to visit her at Ronald or in the hospital. Dr. Maris’s plan is to do 2-4 more cycles of chemo and then to switch to something less toxic. I do believe the “less toxic” options are current clinical trials and most of those are oral and could be done at home. We’ll just have to see how her disease behaves (while trying not to miss Shayne and Shayla………..and Buttercup and Buckeye) too much.

Our address at the Ronald House will be:
The Thomas team - Christi & Angela
Philadelphia Ronald McDonald House
3921 Chestnut Street
Philadelphia, PA 19104
Phone: 215-387-8406

Thank you, dear prayer warriors!

PS: Buttercup is now “tolerant” of little Buckeye, but that’s it. Maybe by the time we get home they’ll be friends. Christi made a food dish for Buckeye today – just like she made one for Buttercup when we lived in the Ronald House in NYC. (Thanks, Goshes!)

6 Comments:

At 25/2/06 7:18 PM, Blogger HeatherB said...

I'm glad to see that smiling face of sweet Christi with her friend Kaylyn (she's quite beautiful herself). I'm sure making potery is a delightful way to spend an afternoon.

I'll be praying for a safe flight tomorrow, and for continued feeling good for sweet Christi.

I'm sure the one-way tickets are scary, but being in Dr.Maris' awesome care must make you feel better.

All my love for always and prayers!!

Heather

 
At 25/2/06 8:09 PM, Blogger California Friend said...

Hi Guys,

I'm sure that even Buttercup just COULDN'T resist the antics of a new baby....I'll bet won't be long & they'll be best buddies!!

I'm sorry you guys will have an extended "visit" in Philly, but it DEFINITELY sounds like the right decision...and besides, Dr. Maris hasn't steered you wrong yet. I know first hand that Doctor's of his caliber are hard to find; I don't know him, but it sounds like he's worth (more than) his weight in gold!

Being away from Shayne & Shayla will be hard, but will be well worth it if the chemo helps Christi to be well again!!

Love & hugs from CA,
Pat

 
At 25/2/06 8:33 PM, Blogger Anna said...

Check out that smile! My mom said she looked a little more vibrant than she did in the Christmas pics.

I was thinking that a long term stay was in the near future. Even though techinically it's the best for her disease management it's harder on the emotions with the seperation.

Have a safe trip tommorrow, praying for you guys! Email me if there is anything I can help with.

Anna

 
At 25/2/06 9:50 PM, Anonymous Elizabeth said...

Oh, that smile. That sweet, sweet smile. What a sight to behold. The entire Thomas Team is in our prayers, for peace, for comfort, for courage, for healing. We also lift up Dr. Maris and his team as they make decisions for Christy.

 
At 25/2/06 10:00 PM, Anonymous Anonymous said...

Amen to the past few days! As always, you are in my thoughts and prayers!! Stay strong Christi! I know your time apart from Shayne and Shayla will be tough. Keep that beautiful smile turned on Christi!
Peace to you all!
Megan in NC

 
At 25/2/06 10:30 PM, Blogger The Adams' said...

WOW!!! Christi-you look so happy! How wonderful! We wanted to let you know that Katie will be participating in the RELAY FOR LIFE with her Youth Group from St. John the Evangelist Catholic Church, Naples, FL at Gulfview Middle School in Naples April 22/23. She is participating specifically for her grandpa and for you....She and her sister also intend to send their "locks" to LOCKS OF LOVE in your honor, as soon as their hair is long enough. You are such an inspiration...! Hug Shayla and your mom and dad-and of course, Buttercup and Buckeye:^)-for us, will you please? Always, The Adams'

 

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