Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Monday, February 13, 2006

Hair Cut


The wonderful nurses at Mercy told me to “bring her right in” when I called them at 7:00 this morning informing them she’s been in pain and says she is having difficulty breathing and that she needed to have her counts checked. I sent Shayla to school (Thanks, Caroline!) and left with Christi for the hospital.

I thought perhaps things were improving as Christi watched “Clifford” instead of curling up in a ball as she’s been doing; however, as soon as it was over she wanted the lights out and just wanted to listen to me read. They drew her blood and via flashlight I started reading Hoot by Carl H. – highly recommended, which I did for hours today. (Still at the hospital nine hours later, my sweet Heidelberg / OSU friend who stopped by ending up reading to her by flashlight too! Thanks, Lori!)

Blood counts revealed that her white count (ability to fight infection) dropped down from 1.7 in the ER Friday night to 1.1 today. With her eyes still closed she asked, “What’s my ANC?” and cried so hard learning it was still zero (meaning more shots). Her platelets were down to a mere “9” (They were 24 on Thursday which required a transfusion, up to 45 on Friday night) so platelets were ordered and a loving volunteer was called to drive to Toledo to bring them back for little Christi. (Praise be to God there are compassionate people who volunteer doing good things for others on this planet!)

While waiting for her platelets I called “The Cuttery Shoppe” to see if Cindy could possibly come to the hospital to cut off Christi’s hair as she just seemed too weak to make it to her 4:30 appointment. (In the end we were still at the hospital at 4:30 anyway.) I don’t know how Cindy did it without crying, I was a near mess but Christi now has a very short hair cut – which shouldn’t be around much longer. (Thanks sweet, sweet Cindy for doing that. You are an amazing actress!!)

Christi continues to be in a lot of pain; therefore in the past few hours we’ve made a big decision. Tomorrow the two of us will fly to Philadelphia with hopes of figuring out what this pain is. I’m hopeful a CT scan of her chest will help figure this “rib pain” and “I can’t breathe” and “My lungs feel only like the size of baseballs.” And “I’m out of breath.” Out. My Mom will fly in from Florida to help me with Christi and the wonderful Mr. Grant from Philadelphia is willing to pick us up at the airport which gives me great comfort.

I’ve called her teacher to see if she’d have their valentine pass out in the morning, but I really question if Christi will be able to make that. She’s so weak and uncomfortable. Tonight while resting with her in our bed she said, “I just wish this was over so that I could eat. I am so hungry.” It’s been about a week since she’s really had a normal amount of food. She’s eating small bites, but that’s all. It’s hard to believe one short year ago she was playing, “Happy Birthday” on the piano for Shayla and she then spent the afternoon entertaining us with her lovely background piano music. It’s heartbreaking.

As always, your prayers are appreciated during this most challenging of times.
Angela

21 Comments:

At 13/2/06 11:09 PM, Anonymous Anonymous said...

Hi Christi

Well, long hair or short, I know you are the most beautiful child I've ever seen. I bet your eyes looks even more gorgeous with your haircut!

I smiled so big when I saw the "puppy" you were holding through your haircut. All three of my children have that pupper and my 8 year old will only sleep with that little guy at night. He's been sick with the stomach flu and just clutches his "Puppy" (the most original of names, I know!)during the day.

I will pray so hard for your trip to Philly so that your pain can be controlled better. It is so heartbreaking to see a child in pain.

Look for a package in the mail real soon! There just may be two new "pets" for you and Shayla! (don't worry Mom, even you will hold these) I'm so squeamish with hamsters too so I thought this was the perfect alternative :0)

Love and blessings,

Stacey
Harrisburg

 
At 13/2/06 11:11 PM, Anonymous kate said...

wow, i wish i could say something that would be meaningful, but it seems like words just can't possibly mean that much. please know that i am praying for you all, and especially with sweet christi. as you fly out tomorrow....may gof be with you always!!!

love,
kate.

 
At 13/2/06 11:17 PM, Blogger Spring said...

Angela & Shayne,

I'm so sorry to hear Christi is feeling so miserable. I know we were all hoping and praying for a much longer respite from the pain. I am sharing in your tears and prayers here in Nashville, and I will be thinking of you all the time while you journey to Philly.

Love you,
Spring

 
At 13/2/06 11:20 PM, Blogger docvee said...

You have all my prayers and support and love. I know this is a rough trip tomorrow, but know that you are all lifted up--especially Christi. God Speed,

Love, Vicki

 
At 13/2/06 11:20 PM, Anonymous Anonymous said...

May the good Lord hold you all close. Saying many prayers for the Thomas Team. I pray you all have a safe trip, and God sends Christi a miracle!!
Megan in NC

 
At 13/2/06 11:27 PM, Blogger California Friend said...

Christi,
I have no doubt that you're just as beautiful with your new short haircut, sweetie. Hoping and praying that your trip to Philadelphia brings you some comfort.

Angela & Shayne, I know that you'd take Christi's place in a heartbeat....been there done that.
I'm so SO sorry that you have to go through this.

Shayla, what would your family do without you? You are SO special!!

Love & hugs from CA.
Pat

 
At 13/2/06 11:31 PM, Blogger Sharon said...

Angela and Shayne,
You'll be in such good hands with sweet Dr. Maris as you already know. I'll be praying for the three of you as you travel tommorrow.
Call me if you need to talk.

With Love
Sharon Romano

 
At 13/2/06 11:48 PM, Anonymous danielle said...

Glad to hear Shayla's 7th birthday party was possible. What a neat, caring family you guys have!

Prayers for a safe trip to PA and a blessed, hopeful visit to CHOP.

Happy Valentine's day, Thomas Team!

 
At 14/2/06 12:00 AM, Blogger Anna said...

I’ve been refreshing this page for a few hours, so I’m sorry the news has to be this kind. I’m just so sad because she’s not feeling well. I will be praying constantly for you guys and checking in a lot (want to see pics of the new hair soon) Safe travels! Love, Anna

 
At 14/2/06 12:08 AM, Anonymous Susie said...

Thomas Team,

How i wish there was something i could do, but all i can do is pray. So with that said i am praying super hard they can find why Christi is having this pain and perhaps some answers will be shed.

Happy Belated Birthday to Sweet Shayla!

{{{{{HUGS}}}}}}
susie

 
At 14/2/06 12:17 AM, Anonymous Anonymous said...

Dear Thomas Team, My prayers go with you as you travel to Philly tomorrow. I hope you find some answers to Christi's pain. In these challenging times please know that the prayer warriors are working overtime. God Bless All of You. Ellen

 
At 14/2/06 1:37 AM, Anonymous Anonymous said...

I have been reading Christy's Updates for almost a year now. Every good one, we thank God, and every sad one we pray. We won't stop. Christy is beautiful and a miracle no matter what. Short hair or long, or no hair. Keep the faith even though it is so hard. Our baby has battled cancer since the age of 2 with horrific side effects not even imaginable. But today he is a miracle though no one thought he would survive, or even be normal. He is. Christy is a miracle. God is a miracle worker. Prayers for your travels and for peace in all decisions. Just wanted to send you some love tonight.

Jen and family.

 
At 14/2/06 4:22 AM, Blogger Angela said...

Dear Angela and Shayne
I'm reading your update at my daughter's place, it makes me so sad to know that Christi still isn't feeling comfortable again. I hope as somebody else suggested that the discomfort with her breathing is just due to the chemo and that soon she will be feeling better again and that her counts will come back to normal and stay there. The haircut looks good, it must have been difficult for poor Christi having her lovely hair cut off, not easy for the hairdresser knowing that Christi was poorly. Give Christi a big hug for me, I will keep praying for improvement in her condition, take care on your trip,
Lots of love Angela

 
At 14/2/06 4:58 AM, Anonymous lisa.Burt said...

I'm so sorry Angela...this is heartbreaking, I simply cannot imagine what you are going through. Prayers, prayers, prayers...

 
At 14/2/06 7:12 AM, Anonymous Anonymous said...

Happy Valentine's day

Keep you in our prayers !!!!!


Uppersandusky , Ohio

 
At 14/2/06 7:31 AM, Anonymous Anonymous said...

Christi, I am so sorry to hear that you are feeling so badly and I hope you can get some relief from your pain when you get to CHOP. We have tons of snow here but the weather is supposed to get nice and warm towards the end of the week!

Angela, Shayne & Shayla: I continue to be in awe of your strength and courage each day when I check the blog, you all are amazing!

I hope you have a Happy Valentine's Day!

 
At 14/2/06 7:51 AM, Anonymous Anonymous said...

I just wanted to let you know that I am thinking of you all the way from a very dreary and cold London England. I have been following Christi's story for about a year - I stumbled across it searching for something completely irrelevant and I have been hooked ever since. Your story is truly one of inspiration and Christi you are beautiful child. I hope the paid resolves it self and that you are back home soon.

Happy Valentines day - my thoughts and prayers are with you.

Tabitha
London England

 
At 14/2/06 8:37 AM, Blogger HeatherB said...

I'm so sorry to hear that sweet Christi is having pain. I'll be praying for you all day while you are in Philly. I know Dr. Maris will take great care of Christi.

So many people love her and love all of you. Know you're loved, and prayed for.

May you feel God's love and comfort in a very real way today.

I love you guys!!

Heather

 
At 14/2/06 10:55 AM, Blogger HeatherB said...

Just praying for and thinking of you. Thank you God for loving friends (Tim) and loving family (Grandma) to help Angela with Christi today.

Praying that Dr. Maris (thank you God for him) can figure out the reason for this pain and get it under control once again.

I love you guys. Holding you close.

Lots of love, tons of prayers,
Heather

 
At 14/2/06 11:19 AM, Anonymous Anonymous said...

Praying for the pain to go away, how horrible this must be. Happy birthday to Shayla ( I too have a just turned 7 yr old son ) and a very Happy Valntines Day to you all. Praying for courage, strength, wisdom and for the doctors as well. God Bless

Becky in Ohio

 
At 14/2/06 2:58 PM, Blogger Java Koala said...

I am so sorry to hear that Christi is still in a lot of pain. The wonderful staff at CHOP will be able to figure it out and do something to get Christi more comfortable. I know I shouldn't and I know it's wrong, but there are times when I get so angry knowing that such a sweet and wonderful soul as Christi has to deal with this horrible monster. I just don't get it. A wonderful young lady such as Christi shouldn't even have to know what ANC is! Thomas Team, your consistent patience, endurance, strength and tenacity is a testament to us all.

Love and hugs,
Java Koala

 

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