So there it is............
The amatuer reading of the MIBG scan is that the head is worse and there are a variety of new spots. This confirms what we have suspected for a few days. Next we will get with Maris and talk game plan.
This photo was snapped of the computer screen by Angela on her cell phone. The bright areas on the top of Christi's head is disease. The shoulder, knees, and pelvis is all disease. There is normal uptake in the abdomen and salivory glands so I can not be sure what is going on there. That will key to understanding our predicament. Sounds like there may be extensive sinus involvement. I will post when there is a difinative plan in place.Shayne
posted by the Thomas team @ 10:03 AM
16 Comments:
Shayne,
Thanks so much for taking the time, when I know your heart is breaking to keep everyone updated.
Christi and all of you are in my prayers. Praying for wisdom in decesion making.
Loads of Love, tons of prayers,
Heather
heartbreaking! Still praying and thinking of you all!
Megan
NC
As a fellow NB parent my heart droped to see that MIBG scan.
Can I just say how brave you both are? I know people say that to you (because I get it too) but I want to say it from a NB parent to another because the way you are facing this and dealing with Christi and Shayla is inspiring to me and I am definately taking notes.
Hugs
Susan Gentry
Oh Angela and Shayne, How I am praying for you today. The scans look awful. I know you are so scared. I pray that Christi is not scared. I still pray for healing too. I will pray non stop today as you are constantly on my mind.
Oh, dear Thomas Family,
I don't know what to say that hasn't already been said. I pray in agreement with the other bloggers, and pray that God will give you all His peace that passeth all understanding, and strength that this world cannot comprehend. Remember, you are never alone. God is with you.
I am sooooo sorry to hear this. I am praying that a miracle will happen soon. Shayne and Angie, please let me know if there is something I can do. I am praying hard for the best. Lots of love and prayers. Renae (Thomas)
Hoping for a miracle. If there is anything you need, please email me!
gabbyamanda13@yahoo.com
a pic says a thousand words, and prayers are ten fold. My thoughts and prayers are with you, may God Bless Christy and Dr Maris as they come up with a treatment plan to help dear Christy. I so wish that I could take her place..no child , no person should ever have to live thru this.
God Bless...susan
Thomas Team~
Shayla is SO correct...there is ALWAYS hope! You have all of my hope and prayers. As hard as I can only imagine it must be, try to be strong and know that there are countless prayers and tears for you!
Hang in there!
Sending more prayers and love your way!! I love you guys!! Wishing right along with everyone else that I had the right words to say right now, but I don't.
Know you're loved, by soo many people and are not alone.
Hope you feel the love and prayers that are being offered for all of you.
Praying, praying, praying.
Lots of love and tons of big hugs.
You are such an amazing family. My life is richer and my heart fuller (although it's so sad today) because I met you!
Prayers, tears, and HOPE from Hoboken, NJ!
Love,
Megan B
may God be with you.
Christy we love you.
Holding you in our hearts, our prayers and thoughts are with you.
I am so sorry to hear all of this going on. I have followed Christi for sometime and always have a link on our site, www.ladybugkatia.com to her site. I am in awe of Christi and her strength. Please know we are praying and we posted a prayer request www.caringbridge.org/fl/katia_leukemiapage for others to pray, and pray hard!
Love, Tracy and Katia (the ladybug)
Wishing I could do something to help but not knowing what. IF I can do anything, please let me know.
With you in heart, mind and spirit.
Love,
Eliza
Like the others above, i have a lump in my throat, tears in my eyes, and a broken heart for your beautiful family. Christi is just amazing. I have been reading about her on her site for about a year. The picture on her main site of her at dance class a few days ago is beautiful. I hope she doesnt suffer too much pain. I will pray for her complete healing. My jaw dropped looking at her scan. I have been reading about several different children for 1.5 years. They always mention the scan but this is the first time i've seen one. That is scarey. Oh Christi, i hope you know we are all praying hard for you sweetie.
Dear Thomas Team,
I "met" Christi through her website and some staff here at Columbus Children's where I am a nurse. I have kept up your BATTLE for over 2 years now and today I am in tears. My heart breaks!!! You have ALL fought so valiantly. You are in MY PRAYERS!! May the PEACE that passes ALL understanding be with your family today.
Maria Hitchcock
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