A very long day
The girls are tucked away on 4 south at CHOP-this is not the oncology floor. There are 67 oncology patients in the hospital tonight-we just need to find a cure! Shari is at the RMH and will relieve Angela in the morning, meanwhile, I will be flying from Cleveland at 12:30 to relieve Shari. (special thanks to all who offered to drive, fly, give up airline miles, or otherwise transport me to Philadelphia. I was very moved by everyone's offer of assistance.) Our dear friend Lisa has made all of my travel arrangements-Yeah Continental.
Christi is feeling more comfortable tonight, mostly due to the morphine. She received her Topotecan tonight as well so lets pray that it is doing a number on the disease. Angela and Shari are hoarse from reading to Christi non stop today. Even under all of this duress Christi needs her mind stimulated-what a wonder she is......
Liz Scott mother of the famous Alex Scott was in on the action today and apparently relieved Angela and Shari while they checked into the RMH. She is pictured with Shari in the photo.
Shayla seems to be taking this all in stride at the moment. It was her 100th day of first grade (photo). That was a much more interesting topic to her than was the fact that I was leaving her. My mom will be quartebacking her care. Those who are seeking time with Shayla during Shaylauary (birthday is Feb 12th) please coordinate with Joan. She is in great hands with Mrs. Rombach the school day as well (reminder-Christi was in Mrs. R's class when she was DX, when Christi was in isolation Mrs. R. would stop by and tutor Christi, after we went to NYC she kept in constant contact with Christi with wonderful greeting cards-she is a selfless saint http://www.christithomas.com/images/MVC-005F.jpg)
That's all for now. I promise to have Angela back in touch with her keyboard tomorrow.
Shayne
posted by the Thomas team @ 10:07 PM
27 Comments:
Shayne, do we have an inpatient address for your sweetie yet? I'm itching to get her some stuff in the mail to hopefully make this hospital stay easier!
i stumbled across your webpage from julianna's site, and i just wanted to let you know i am praying for all of you constantly. hold on to hope...!
Why is it no surprise that Liz showed up just when another angel was needed..such selfless, giving people. Only those who have walked in your shoes can truly know what you need. Our thoughts, hearts and prayers travel with you Shayne. Just knowing you are on your way must be such an incredible relief to your girls!
I TALK ABOUT YOU TO MY HUSBAND LIKE YOU ARE FAMILY. I CAN HARDLY MAKE IT A HOUR WITH OUT COMING TO MY COMPUTER TO CHECK ON CHRISTI! THANK YOU FOR WORKING SO HARD TO KEEP US ALL POSTED, AS A PARENT WHO HAS LOST A CHILD TO NB I KNOW HOW HARD THIS IS FOR YOU!! THANK YOU, THANK YOU, THANK YOU!! I KNOW THAT I AM NOT THE ONLY PERSON TO FALL IN LOVE W/ CHRISTI AND HER FAMILY! MY HEART IS BREAKING AND THE TEARS WON'T STOP! I PRAY NOW FOR COMFORT AND REST FOR YOUR FAMILY! STAY STRONG!
TAMMY MOM TO ANGEL CODY
Hi Shayne!
Congrats to Shayla for her valiant 100 day in 1st grade. That is a big accomplishment!
Glad to hear your plans are set and you will be with Angela soon!
Give Shayla big hugs from us and Molly!
Share those tomorrow with Angela and Christi!
Love you all!
Mary Mollway and family!
Hi Guys, I'm so glad to read that you have a plan. I totally agree w/going w/what Maris says right now too. Your brains are probably fried right now...
I hope it is easy on Christi. Shayla looks great. Tell her "Happy 100th Day" for us. Continued Blessings, Love, Ellen and the kids
http://www.caringbridge.org/ma/seanhanson
Dear Shayne and Angela,
I ache for you with this latest news. Words seems so inadequate. I wish I could give you all a strong hug. I am hoping you find renewed strength and wisdom. All my friends in Arizona continue with the deluge of prayers for Christi.
Love,
Your cousin, Lora
Shayne,
Thank you so much for keeeping us all updated, I know it must be difficult to find the time, but like someone else mentioned it helps to know how to focus our prayers.
I'm sure that Christi and Angela will be delighted to see you. I'm so glad Christi is getting some pain relief. And wanting to be read to, what an incredible little mind she has.
And yes please let us know when you have the inpatient address.
Please give Angela and Christi several big hugs from me.
Shayla- Congrats on getting to 100 days in First Grade- that's great and you look soo beautiful! What a pretty little girl you are.
Have a safe flight Shayne.
Praying hard that this chemo is working hard on the cancer.
With all my love and tons of prayers,
Heather
Dear Thomas Family,
You are all in my thoughts and prayers every day. I am praying so hard that this new drug combination does it's job to help make Christi feel better.
I learned of you from Katia Solomn website. I just want you to know I am praying for you here in NJ. What an amazing little girl. God Bless you!
Thomas Team,
I hope that today and each day coming brings more hope into your life than the last few have. I'm thrilled Shayne is going to be able to make it out to be by your sides, I know it will make his girls feel much better! Can you believe the amazing outpouring of love for sweet Christi? I bet that almost everywhere in the world, there is SOMEONE carrying Christi in their hearts and in their prayers.I know I am!Lots of hugs and prayers for better days to come. Congratulations Shayla on making it to your 100th day in 1st grade! Tell mommy and daddy to give both you and Christi a HUGE hug from me!
Thank goodness you got a room at the hospital and the Ronald. So glad something is underway to make Christi feel beter. Praying for you.
Lydia Leslie
Constantly thinking of and praying for you all. I love you dearly. Thanks for posting Christi's in-patient address. Please don't hestiate to ask if there is something specific she or you and Angela would like.
A big hug to my hero, my inspiration. Thanks for keeping us all updated, and for posting the new picture of Christi. I was glad to see a smile.
I love you- all 4 of you so very much!!!
Love, hugs, prayers and HOPE from Columbus!!
Heather
Ooops now darn it-that's what happens when I don't think before I post! Eliz in CA had asked about gift cards that would be helpful, yes I-please let us know what type of things would be most helpful financially, meal cards etc.
Love forever and always,
Heather
Thanks so much for the inpatient address! Is there anything specific that would be helpful for you guys at this point in time? What does Christi like to read? To play with? Is there anything Shayla likes? What about you and Shayne? What do you guys need?
Hi Shayne and Angela,
I can't imagine the relief you must have to get medicines into your champion girl. I hope you are able to rest your minds some, if not sleep. Hoping and praying, as always, for all of you. Little Shayla too.
Love,
Colleen Kashino
Holding youclose in prayer and hoping for some goodnews today!!
Megan in NC
I can only imagine how happy Christi and Angela are to have you with them!! Thank you for posting her inpatient address.
I am hoping for some Shayla time this Shayluary(so appropriately named)...let me know when I can plan for a girls day. She looks so cute in that picture of her 100th day of school.
Praying this chemo is doing the trick. Christi is such a little fighter!
Lots of love, Jennifer
I've been checking up on Christi through the internet since I met her two years ago at Heidelberg's Lemonade Stand. Hearing her read to our class brought me to tears. She is an amazing girl and has so much to offer this world! She and your whole family are in my prayers. I email friends and family with updates and with prayer requests for your little girl. I have moved to new jersey and am only a few hours from philly so if you need anything please email me (johnston_melissa@hotmail.com) I know I havent met you - angela - but I have had the honor of meeting your husband and your two daughters and would be happy to help in any way possible!
I pray that your next post will have some encouraging news!
Melissa
I came to your page after about 3 other people's carepages (one person mentioning another child and that child's care page mentioning another child and that child's carepage mentioning your child.. whew) but what I want to know is Why does this happen to the sweetest kids? probably because the rest of the people wouldnt be able to handle it with such strong courage. Christi's story just breaks the heart. Such a darling. Praying for a miracle.
Jess Sporte
hi dear thomas family,
I have been thinking about you all day and know you just must be having a really difficult time.
Keeping you all in my thoughts,
Eliza
Thinking of you and praying so hard.
Loving you holding you close in thought and prayer.
I love you guys!!
Heather
I find it amazing how people find themselves here. I posted a message about Christi on a message board I post on which led someone to post about her on a message board they went to which led to me getting this email asking me to pass it along to Christi! What a small world!
Dear Christi,
Hey! I'm from another board, a horse-racing one, but I heard about your story and I just wanted to send my wishes your way. I'm more confident than I've ever been you'll get better, more money has been donated to cancer research than ever before, through Afleet Alex and Alex's Lemonade Stand. You may know Alex Scott's story, her lemonade stands have raced thousands of dollars for cancer...as for Afleet Alex, he's carrying on Alex's project, and a portion of his souveniers/race earnings/ stud fees are being donated to the cause, too. That's quite a bit of money! Hang in there, I'll keep praying for you.
Best Wishes,
Lauren
Dear Thomas Team
Thinking about you all day today. Walking through the grocery store, Christi's beautiful face would just pop into my mind and I'd wonder if she'd like a certain type of cookie, chocolate milk etc... I truly believe this is Gods way of helping us to remember to pray and thank him for bringing such a bright light into our hearts. HOping and praying for all of you tonight and wishing I could hug each and every one of you.
Love,
Stacey
Harrisburg, PA
I don't know your family very well. I met Christi when she read to our class at Heidelberg and we had the lemonade stand, 2 years ago. That day has changed my live, seeing how much courage Christi has. I keep your family in my prayers.
Stopping in to let you all know that you are still in my constant thoughts and prayers!
I love Shayla's picture... what a beautiful and innocent smile! And Shayluary should definitely be special for her!!
Trying to work out some things to send with the competition dance girls here... for now they want to let you know they're all praying for you and they think you're a pretty special girl :O)
God Bless!
We LOVE you!
i remember my 1st pair of toe shoes. here's a gift for christi!
http://www.nikkichannel.net/ubb/toes.jpg
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