Christi had been having shallow breathing about every four seconds yesterday.
Dr. Maris was in about 10:30 AM and again about 6:00 PM yesterday taking such time and sharing compassion for us.
(I didn’t realize he only treats about 30 patients.)
Both times telling us it shouldn’t be much longer.
About 2:00 AM her breathing increased to about every 2 seconds and since 4:00 AM it’s been every second.
I can’t imagine her body can hold up much longer.
I keep waiting for that final breath and for her heart beat to stop.
We hope it’s peaceful, but Dr. Maris has warned us that it may
not be and we may witness some more horrific episodes before she dies.
Through oceans of tears, we’ve told her how loved and cherished she is and that she’ll always be in our hearts and that the world is a better place because of her.
(Dr. Maris told us yesterday that saying these kids touch a lot of lives is a bit cliché, but with Christi’s it so much more than that.
How she lived her life really changed so many and brought about such good.
He also joked that she was the one always looking like a cancer patient’s sibling out in the playroom, surprising so many that she was terminally ill on the inside.)
We’ve lied and told Christi’s it was okay to go and that we’ll be okay and she can show us around Heaven when we get there.
We’ve told her we’ll leave this earthly world and be together again sooner than she can imagine.
Dr.Maris said it must be hell waiting for her to die, and he’s right.
He also reminded us that he’s probably not going to be successful in establishing a cell line from Christi’s tumor as he only has it work 1/20 of the time.
He did say having a “fresh” sample is good.
(He also said that if it grows he would be happy to name it the FU NB 2006 cell line for us.)
The past four years have taken a toll on us emotionally, financially and physically, yet I know I could have lived that constant treatment life 40 more years without complaint because I knew how lucky we were to still be in this fight.
It breaks my heart to think of a world without her little body in it.
She taught us how to live (busy) and how to laugh (often).
I feel like a huge part of me is also dying.
Christi had been having shallow breathing about every four seconds yesterday. Dr. Maris was in about 10:30 AM and again about 6:00 PM yesterday taking such time and sharing compassion for us. (I didn’t realize he only treats about 30 patients.) Both times telling us it shouldn’t be much longer. About 2:00 AM her breathing increased to about every 2 seconds and since 4:00 AM it’s been every second. I can’t imagine her body can hold up much longer. I keep waiting for that final breath and for her heart beat to stop. We hope it’s peaceful, but Dr. Maris has warned us that it may not be and we may witness some more horrific episodes before she dies.
7 Comments:
I'm very happy to hear that her breathing is a lot better. *is every second normal??* lol. I'm a christian and I hope heaven is everything and much more that I have read and heard about, if it is, then Christi will have so much fun and lots of things to do that she enjoys. Hey, maybe those 23 books she didnt get read will be up there? :)
Much luv to you all...
Krystal
Fly away on angel's wings sweet baby girl! You are so very loved and you will be so very missed! Watch over your mom, dad and sister! They need to feel your heavenly hugs and kisses! Whisper in their ears how much you love them, that you are okay and that you will see them again one day!
With love and continued prayers -
Kim
Continued prayer for Christi and your family during this heartbreaking time.
To say that Christi touched a lot of lives is an understatment and so very, very true.
I pray for her peaceful passing to Heaven. Although I wish that she could stay here with you in your arms.
With love,prayers and tears,
Heather
As I finished my morning run, I thought of Christi running though the gates of Heaven. I asked God to let her spirit fly - peacefully, joyously, gracefully - into the arms of Jesus. I thanked God that wherever the *best* place is for us to spend eternity, is the place where Christi is guaranteed a spot. It is so heartbreakingly sad that she has to leave this Earth, but there is humble joy in knowing that she gets a *certain* and special place in Heaven. Sweet Christi, be lifted by the wings of our prayers, and fly free. God bless you, Thomas family.
I love how you are putting the pictures of Christi when she was younger...she is so beautiful and you must be so proud of how hard she has fought this battle.
Peace to all of you.
Christi Thomas was difently 1 in a million.
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