Love from the Big Apple!

Over the past three plus years of fighting the nasty dragon we’ve met many beautiful Angels here on earth - richly supplying us with strength, encouragement and inspiration. Two of those amazing people, drove down from NYC today to bring Christi some cheer and to spend some time with us. Well, Christi just wanted to go to sleep after a day of being awake for nearly 8 hours, but I was thankful to have a break from this hospital by sitting next to a fireplace at “The Bubble House” and visiting with two brilliant and loving women who taught many of Shayla’s preschool art classes at the Metropolitan Museum of Art. I’m still in awe at their kindness. (And thanks to my wonderful mother for staying with Christi and starting yet another book during her platelet transfusion this afternoon, so I was able to step out with friends.)

While Christi was receiving the IV form of the GCSF injection tonight, I received an email from the wonderful Dr. Maris which said, “I think that it is important to stay on the dreaded GCSF until the ANC is well above 1000. I also think we should try to start a second round of chemo the week after next.” Well, he definitely rained on her parade! And with an ANC of zero, it could be a while to reach 1,000!

Surprisingly enough, other than her hair falling out and causing her “the itchies” she’s handling it all very well. One nurse was caught a bit off guard when Christi asked, “Would you like a souvenir?” as she pulled out some hair and gave it to her. So funny!)

A very special thank you to Diane, Jack and Jake from Illinois!!

CHRISTI’S HOSPITAL SUGGESTIONS:
1.) Arrange the kids by ages on the floors so that all of the same aged kids could be together to play.
2.) The IV poles should be hooked directly to the nurses’ pagers so when they go “beep beep” the nurses would fix the poles right away. (I was thinking implant chips– he he heeee!)

CHRISTI'S FUNNY: Tonight's sweet nurse was taking Christi's temp when Christi pretended to nibble on the nurse's hand. "My compliments to the chef," she boldly stated causing the confused nurse to ask, "What?" while Christi burst into a fit of giggles. I'm relieved she's feeling better even though she is still needing pain meds 24/7 and irritable when they start to wear off.