Support For Christi Thomas

This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.

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Wednesday, February 15, 2006

"So now you sit"


What a difference a day (and a night's sleep) make!! I'm doing much better today! I went to bed, feeling happy about her decreased pain about 2 AM only to have her crying in (rib) pain at 3 AM; therefore, she's back on the dilaudid while the Tylenol also continues.

After a much needed night's sleep, I woke at 9:00 AM and when I stepped out of the bathroom at 9:30 am I saw two ABSOLUTELY LOVELY AND COMFORTING AND FAMILY faces in Christi's room - Dr. Maris and Pat Brophy! WHAT JOY! I can't even explain how nice it felt to finally believe someone was really in charge of Christi and that someone really knew her situation. Praise Him!!

Christi continues with a light fever, but I feel she's doing better today. She sat up and played "Chutes and Ladders" with Grandma Nonee. Now she wants it quiet so she can rest her eyes so Nonee is busy reading yet another good book while I made a beeline for the playroom down the hall so that I could update you. Her lack of eating anything is a concern, so a nutritionist will be coming by to explain how to get more calories into her (and not me, right?!).

Dr. Maris is confident that the chemo is working due to her decreased "lumpity bumpities" on her head and he also noted that her eyes look great. (Whew!) Upon examining her, he cancelled this morning's CT because he believes that her rib and spine pain is from the Neupogen shots. Thank you, Lord!! (When they caused bone pain years before it was in her legs, but he said this rib/spine pain was common too.) I know he likes to think of the glass half full, but it has me feeling much, much better - and how nice of him to get back into town last night and to come to see her before leaving town again today. What a Godsend Dr. Maris is to us! We have been richly blessed to be in his great care!!

So far nothing has grown in her cultures so we hope this fever and not feeling well is a result of having no immune system and that there isn't a nasty infection brewing. Dr. Maris said we'll need to talk "quality of life" and he'll need to determine what chemos to start, but that will depend on how long it takes her ANC to recover (but with it being zero, we can only go up right? hee hee!) Dr. Maris told us to plan on hanging out here for 3-6 days. "So now you sit," he said before leaving.

38 Comments:

At 15/2/06 11:00 AM, Blogger ~Misha's Family~ said...

SO glad you've got "good" news! Still praying.....

 
At 15/2/06 11:28 AM, Blogger Angela said...

Dear Angela and Shayne,

I just arrived and home and looked in on you. I'm glad to hear that Chrisi doesn't have a nasty infection, great that Dr Maris was there to see Christi today.

I'm praying that Christi will soon feel better and not need the injections that she hates so much.

Sending lots of love
Angela

 
At 15/2/06 11:33 AM, Anonymous Anonymous said...

This is such great news! I felt certain as I mentioned before that the pain was from those nasty shots. With her eyes looking so much better and her lumps being gone lead me to believe that. I'm hoping the whole breathing problem was just anxiety. (seeing as how she is already feeling better and eating). I'm not a doctor but it mimics the symptms that my daughters best friend suffered as she was going through chemo.
We will keep praying for all of you. Jodie and Karlie

 
At 15/2/06 11:42 AM, Blogger Kait said...

I'm so happy that Dr. Maris does not believe Christi pain is being caused by disease. What a relief! Please post an inpatient address as soon as you know what it is :) The outpouring of love for Christi and your family just warms my heart. She's the little girl who inspired the world.Love and Prayers.

 
At 15/2/06 11:51 AM, Blogger HeatherB said...

I'm so glad to hear that Dr. Maris was able to make you feel so much better Angela. What a great doctor.

I pray her ANC will go up and soon and for wisdom and guidance from God for all of you to make good decesions for Chisti. She's on my mind and in my prayers constantly.

Christi- Thanks for having Mommy udpate on what books you are reading. I'm keeping a list of your recommended ones for my brother to use in his 4th grade classroom. And for myself to buy someday for my two nephews (currently ages 6 months and 6 days) :)

Love you guys dearly!!

Love and prayers,
Heather

 
At 15/2/06 12:05 PM, Anonymous Susie said...

{{{{{{{{{{HUGS}}}}}}}}}}

 
At 15/2/06 12:13 PM, Anonymous Audra Lehew said...

Continuing to pray for all of you.

 
At 15/2/06 12:18 PM, Anonymous kate from iowa said...

i am so greatful that you got to see your doctor, christi! he sounds like a wonderful man. praise god for feeling better and playing a game!!!! i hope you start feeling even BETTER now!

you are all in my prayers!

love,
kate

 
At 15/2/06 12:40 PM, Anonymous Anonymous said...

Angela, My heart and prayers are with you for God to continue to give you and Christi strength and healing.

I came upon you site in of course reference from another, from another, and so the cyclical process.

I'm a mumma in my forties who went back to school to earn my law degree two years ago. Although my son Joseph, (passed now for 18 years) passed from heart problems, upon reading your journals I remember. Some may believe this is a self defeating (my ex-husband) issue bringing back the past. However, this it is not. So many have reminded us just how important our babes are to us, and the importants of time, hugs, love and kisses with our children. While my studies, as I look at the past two years, have taken from both some quality time; your presence have reminded me where I have been in the past.

So often when remembering Joseph, I felt guilty because that immense undescribable roller coaster of emotion, living from day to day on a mental elevator had escaped me over the years. However, I can definately again feel your pain. What a gift, to be reminded of the importance of life with my children again!!!!!

Christi has been and will continue to be a blessing in so many ways. My prayer is that the Lord will continue to bless you and yours with his gift of life and bring forth the healing that she so justly needs at this time. Believe, believe, believe.

My eighty-one year old (on friday) mother received her results yesterday. She is now 1.5 years healed of stage four lymphoma. Although they stated that a women of her age could not handle the prescribed treatments, she is here. She continues to work at least twenty hours for the church food pantry, (she lies about the over-time).

I will leave you with this from God's word. God has not given me a spirit of fear but one of love, power and a sound mind. This is one of several I post above children's doors, beds, closets (messy ones), cuboards etc. They remind us each on a daily basis of God's promises to us. May his peace and blessings be with you.

Mina and children from Grand Rapids Michigan via Denver.

 
At 15/2/06 12:40 PM, Anonymous Anonymous said...

I am so glad Christi is feeling a little better today, and that the "lumpity bumpities" are responding to the chemo. It is wonderful that you have such a great doctor. I know that my daughter's oncologist was amazing in her treatment and held on to us each step of the way. They are extraordinary people. Sometime we forget just how lucky we are to live in an area with the best hospitals, doctors and nurses. my heart is with you, thank you for updating us, we have the prayer team going strong for you all.
love, an nb mom

 
At 15/2/06 1:06 PM, Anonymous Anonymous said...

Prayers are being sent your way. My heart is still breaking for Christi, I feel like I know her. Good luck for the next few days, I will be checking in often and thinking about your guys. Take care.

 
At 15/2/06 1:10 PM, Anonymous Candy Belanger said...

It sounds like you are in very good hands at CHOP. Now...what can WE do for you?

I know I'm not the only Christi fan who is wondering how we can help out the Thomas Team right now.

McDonald's giftcards?
Barnes & Noble giftcards?
Cute hats for Christi?
Phone cards?
Starbucks giftcards?
Books/magazines?

Just say the word. The same goes for Shane and Shayla...is there anything anyone can do to make things easier for them at home? Please don't be shy:)

Thinking of you always!!

 
At 15/2/06 1:44 PM, Anonymous Colleen M. Kashino said...

Dear Angela and Shayne,

Please know that no matter how overwhelmed you are both (Angela, because you are there, Shayne, because you are not) - there are about a million people who are with you both. I can't get the four of you out of my head. I am sure nobody can. You are never alone! And constant prayers for your beautiful Christi!

With Love,

Colleen Kashino

 
At 15/2/06 2:01 PM, Blogger Anna said...

Yay she's doing better, let's hope it keeps improving!

Glad your trip was smooth and the wonderful Dr. Maris was able to cancel the CT scan (why give her another procedure).

Go Christi!

Anna

 
At 15/2/06 2:38 PM, Anonymous Anonymous said...

Thomas Team :) Oh happy day, what a miracle that the pain is from the shots. Of course, Im heartbroken she is in so much pain, but praise HIM it is not from disease!! Praying for Christi's ANC to rise, rise, rise ... so the anxiety of those dreaded shots will leave. Thank God for every miracle that little Christi ( and her family of course ) is being given. Praying for Shayla to be happy and for her worries to ease. Continue to have a good day, Thomas Team :)

Becky in Ohio

 
At 15/2/06 2:39 PM, Blogger Terri said...

I am so glad to hear of some good news. YOu never cease to amaze me Angela. I can see where Christi gets her personality from. I'm sure Shayne has a lot to do with it too but in the face of all that you are going through you can still type in such a way that shows your sense of humor hasn't left.

I pray God continues to guide you and your family. I have also told all my Weight Watcher friends on the boards to keep Christi in their prayers. They are a wonderful group and every prayer can only help.

God bless you all...

 
At 15/2/06 2:54 PM, Blogger Olivia said...

Dear Christi:

I am glad to hear you made it safely to Philly with your mom. I am sure you're enjoying your time with Nonee. I hope you feel better soon. Enjoy the reading sessions. I love to read...my favorite book is 'The Little Prince'...I think you might like it!

Smiles,
Olivia

 
At 15/2/06 3:02 PM, Blogger Olivia said...

Dear Thomas Team:

I just wanted to thank you for your courage and for sharing your story. You are all such an inspiration. I am going to be participating in a run/walk for Cancer Research UK in Belfast this June. I'll be running in honor of Christi, in memory of my brother, and most importantly...for hope that some day soon there will be a cure for this nasty disease.

Thank you for sharing your faith, love, hope and courage. You've touched more lives than you will ever know.

Olivia

http://www.raceforlifesponsorme.org/belfastlemur

 
At 15/2/06 3:07 PM, Anonymous The Hollway family said...

Hi Christi and Angela,

So good to hear you slept well and are in good hands now. I was remembering back wwhen Molly had treatment, and the week or her counts going down (after Chemo) and bottoming out was very hard on her. Christi has so many other things going on, it is amazing she even got to go home!!

Our prayers will continue...Kill those cancer cells Chemo!!

love,
The Hollway's in Minnesota!

 
At 15/2/06 3:24 PM, Blogger Jennifer said...

I'm so happy to hear this news today. I'm glad you are feeling better today after such a stressful night. Dr. Maris is such a wonderful doctor! I'm relieved he feels that this pain is nothing more than from those nasty shots.

Love & Prayers,
Jennifer

 
At 15/2/06 3:32 PM, Anonymous Alea from Pittsburgh, PA said...

Hi Thomas team

My thoughts and prayers are with you all during this trying and difficult time. God bless you!

 
At 15/2/06 4:01 PM, Blogger Becky said...

Hi,
It was good to hear that your Dr was able to come and give you that ppeace of mind that someone is in control.Of course we know God is in control but it is so wonderful when he sends earthly angels to help us see His goodness. Our family is praying so hard for ya'll. We wish there was something we could do to help but we are so far away. My daughter made a fleece blanket for both of your girls but we have been sick with colds this weeka nd we were afraid to send them with Christies immune system being so low we didnt want to send and unnecesary germs your way. Maybe when she is doing better.They are fleece throws with ballarinas painted by Degas. Well I hope you are able to get enough books to read. Please know that there are strangers all over praying for you.My husband is a Pastor and our kids bring up Christi every Wed. night in youth group and i have let the ladies know how to pray each week for Christi. Have a restful night!
Becky

 
At 15/2/06 4:02 PM, Anonymous Anonymous said...

Glad to hear the lumpity bumpities are decreasing. Praise the LORD for Dr. Maris, looks like you are in great care and can hopefully soon get home to Daddy and lil Shayla. LOTS of Prayers her ACN goes back up.
Laura Gray (Stephenson)

 
At 15/2/06 4:18 PM, Anonymous Anonymous said...

Sending hugs and warm wishes to you and your family from San Francisco...

 
At 15/2/06 5:17 PM, Blogger Spring said...

Angela, I'm so glad Dr. Maris came by so you have a plan now. His comment, "So now you sit," reminded me of some verses I love from Psalm 139, and I want to share them:

"O LORD, You have searched me and known me. You know when I sit down and when I rise up; You understand my thought from afar. You scrutinize my path and my lying down, and are intimately acquainted with all my ways. Even before there is a word on my tongue, behold, O LORD, You know it all."

Not coincidentally, later in the same psalm, it says:

"For You formed my inward parts; You wove me in my mother's womb. I will give thanks to You, for I am fearfully and wonderfully made; wonderful are Your works, and my soul knows it very well.

My frame was not hidden from You, when I was made in secret, and skillfully wrought in the depths of the earth; Your eyes have seen my unformed substance; and in Your book were all written the days that were ordained for me, when as yet there was not one of them. How precious also are Your thoughts to me, O God! How vast is the sum of them!"

I think those are the perfect words to remember for Christi right now. No matter how often I think of her and pray for her, I know the Lord's thoughts for her outnumber mine a million to one! And more importantly, Christi was His child before I had the privilege of knowing her and her amazing family. I know that God formed her precious little body -- every rib, every hair -- and He had a plan for her before I could even comprehend such a thing.

I am trusting in His plan for Christi and your family and the fact that God made the amazingly complex human body, and He knows how to heal it. That doesn't keep me from crying and feeling so sad that you are enduring this, but those verses were a great reminder for me today of how awesome our God is.

Thank you for allowing me to share in this journey with you and for keeping everyone up to date via the blog. God bless you and keep you today.

much love,
Spring

 
At 15/2/06 5:44 PM, Anonymous Ronit said...

so glad you are doing better today (both of you)! Hope Dr Maris is right and that the chemo IS working. Hope today was a good day, and that tonight will bring you more sleep and rest.

Thinking of you all the time...

 
At 15/2/06 5:49 PM, Blogger Mary from Maine said...

I came across this inspiring movie clip and thought you might enjoy it too.
http://www.thesurvivormovie.com/
-Mary

 
At 15/2/06 6:56 PM, Blogger Jan Wilder said...

Hi Angela and Christi!

So glad you are both feeling a little better. Gee Angela, even when you are totally frustated and venting...you are still so sweet and polite!

At least you came AFTER our big snowstorm and didn't have any problems with your flight.

I am only 40 minutes away from you so if there is ANYTHING at all you need or that I can do for you...please feel free to email me. You can check with Marsha at Hugs and Hope if you want a reference...she visited me for a week a couple of years ago.(kaseyko@yahoo.com)

I will be praying and will put you all on the prayer list at church tomorrow.

Hopefully tomorrow will find you feeling even better!!

Love and Blessings,
Jan

 
At 15/2/06 7:08 PM, Anonymous Anonymous said...

You are so loved Christi! Hugs from another mommy and teacher who has grown to love you! If you were my daughter or a student in my class I would feel so incredibly lucky! I wish I could inspire my second grade students to love books the way you do! Let all the love from around the country surround you in warmth and peace precious one! God Bless you! You are so beautiful!

 
At 15/2/06 8:54 PM, Blogger HeatherB said...

Praying for you tonight.

I love you guys dearly!

Lots of Love, tons of prayers,
Heather

 
At 15/2/06 9:08 PM, Anonymous Anonymous said...

The news sounds good . The Chemo is working that is a plus . Praise the Lord . Sounds like Mom is doing fine . We will continue to pray for good results and good news . Check on you girls later .

Take care,

UpperSandusky area

 
At 15/2/06 9:12 PM, Blogger NaRfEd OuT said...

I will be praying for you Christi!!!

 
At 15/2/06 9:47 PM, Anonymous Anonymous said...

Phew - this entry gives some comfort to us all! I'm so, SO glad that Christi is doing just a little bit better :) I pray with all my heart that this chemo is doing just what it is intended to do - saving her!!!! Go Christi! You're so brave, sweetheart - and I bet there's not one of us reading all this that wouldn't take it all away from you if we could. Please know that your hands are being held by thousands.

 
At 15/2/06 10:06 PM, Blogger California Friend said...

Isn't it amazing how the sight of a familiar & trusted face can make you feel SO much better!! Christi has the BEST care, both on the medical front & on the homefront.
Praying that all continues to go well.....as you sit!!

Love & hugs from CA,
Pat

 
At 16/2/06 12:47 AM, Anonymous Anonymous said...

Continuing to keep Christi and your family in my thoughts and prayers!!!

 
At 16/2/06 7:14 AM, Blogger karel said...

hope you like the art kit and balloon that you received yesterday!! hope you like the
pjs i sent you too.

glad to hear your lumpity bumpitys are going away, and hope Dr. Maris will let you go home soon.

 
At 16/2/06 8:57 AM, Blogger HeatherB said...

Thinking of you all today and always! Praying hard for Christi. I hope her night was a restful one and that the pain is going away and that her ANC goes up and soon!!!!

Christi- I shared some of your great book suggestions with my brother and he put them right on his request list for the school library! :) He says thank you for sharing!!

Love you guys dearly.

Lots of love, tons of prayers,

Heather

 
At 16/2/06 12:55 PM, Anonymous Justine, mom to angel Lance said...

Dearest Thomas Family,
Just wanted to send you all my love and prayers... I think of all of you daily!! I will be praying HARD that Christi's WBC gets back up there to avoid those nasty shots!!!!!!!!!!

God Bless,

 

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