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This blog is to help offer support to the Thomas Family and their daughter, Christi, in her battle against cancer. Please visit Christi's website at www.ChristiThomas.com to learn more. There, you'll find journals, photos and a lots of other information about this amazing child and her family.
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For Friday night’s show Aunt Marty and Uncle Jeff came up, as did “Harriett” (who would have driven to Oklahoma because she heard, “Shayla’s in Oklahoma!”, but thankfully Chris drove) and therefore she arrived safely! Chris brought her the cutest gift! It was her two favorite animals (a horse and a dog) dressed like the leads in the musical. Curley with his cowboy had and Laurey with a wedding dress and bonnet. Shayla REALLY liked that!
The children (or the “little people” as the high schooler’s called them) were arranged in “families” and Shayla loved her “mom” and “dad”. Her dad sent her a flower back stage and on the card he wrote, “You are the sweetest kid ever,” it was precious. I loved watching all of my former students perform. Some of them I not only had for junior high, but also for kindergarten; that was amazing! The talent of those kids is unbelievable and with the new facility the show could not have been any better. What a blessing to have been able to partake!
(White House Egg Roll, 2004)Trust me, I am NOT complaining! I absolutely love being busy (when it does not involve rushing around with unhealthy loved ones)! It was a very long, tiring week. After getting home at midnight, we returned to school on Tuesday morning and I returned to Ohio State this week as spring break is over and I begin my FINAL quarter of classes, praise the Lord!! Shayla was incredibly busy after school every day with ballet, jazz and horse lessons. Then it was a quick bite to eat and off to musical practice. She returned home close to 10PM each night, but never once complained; she's absolutely loved all of this! Everyone has been very sweet to her and she will be saddened tomorrow when the curtain falls for the final time.
Shayla really enjoyed the city and is an amazing traveler!! At the Natural History Museum Shayne and I were both without our breath for a bit when we walked into the mammals room and both distinctively remembered Christi sketching, for a lengthy time period, in that room. Shayne also entertained the girls in the city in July of 2004 while I was attending teachers’ meetings. Although sad, I did enjoy seeing the places he took the girls. He is the most amazing dad, and husband.
When we arrived in another city on Saturday night and checked into our hotel, we were upgraded to a suite! Yahoo! It worked out very well with the egg hunt that had to take place in our hotel room on Easter morning. Shayla woke up, came into our room and cuddled with us for a while. She went to the bathroom and we heard her yell, "Is it Easter because there are eggs in here?!" She had a ball and I just kept telling myself that Christi lives on through Shayla.
Well, I couldn't manage the thought of being home, without Christi, for Easter so I planned a last minute get away and it's been quite helpful medicine! After Shayne came home from work on Thursday we drove to Colonial Williamsburg. The ten hour drive didn't seem like it because two of us slept. The amazing Shayne drove throughout the night, just like he did so many times with Christi. We even took the same roads for quite a while before heading south so I worried that it was too much for him, but when I inquired he responded he was doing ok. Today I learned we had inches of snow at home, so I'm doubly glad we left town!
In preparing for the trip last week, we learned that they have costume rentals for the children, so Shayla and I did some Ebay searching looking for little girls Colonial dresses. Well, when she saw them she decided she liked Pioneer style better. Even though it wasn't the same time period, she said, "I'll be a girl of the future!" She had a ball on Friday, dressed in her Pioneer dress and receiving so many compliments on how well she was dressed and so many tourist asking her if I made her costume (Shayla you didn't really need to laugh that hard each time!) or if we'd found it in a giftshop. As you can see from the 100 photos, taken on Friday, we had a non-stop 11 hour day learning (and living) history! (OK, I decided to go with all 100 photos on Photobucket, but in about five sections (posted below) because I just hung up with my mom and I know she wants to see all 100 - God bless her!!) Being there with a very excited little Miss Elizabeth (yes, we changed our names to be more Colonial, hee hee) was absolutely incredible for William and Anne Thomas (aka Shayne & Angela)!! We have now ventured to a new city, made it through Easter and will share a few pics soon. Until then, be well!!
Shayne made it to the cemetery; I couldn’t bring myself to go out there yesterday. It’s all just so sad. I try to remember her last Easter with us and how well she was feeling and how happy she was, yet it does little to ease my sorrow. I tell myself she’s free of pain, yet it doesn’t help with my own selfish desire of wanting her here in my arms and wanting to see her face discovering her Easter basket.
My k-6 elementary and 9-12 high school and Shayne’s high school was demolished this week. I didn’t think I’d be so sad to see it, but I was moved. Although I remind myself how incredible our new school is, seeing our old one – along with all of our wonderful memories – torn down added d to my sadness.
I cannot believe today at 9AM will mark the one and a half year anniversary of Christi's departure - eighteen months without her, ergh! I cannot believe how terribly sad I still am. I wish I could at least pick up the phone and call her and hear her little voice!My thanks to sweet Olivia for sending me this poem. I am missing you, sweet Christi!
Easter morning, 2000

Many times this evening I thought back to our NYC days and St. Patrick's day in 2003. On that day we did not realize Christi was to have yet another day of stem cell harvesting and in the afternoon we received a phone call from the Day Hospital asking where Christi was and why she didn't show up.
PIC: Yet another day of harvesting her stem cells (Christi, age 5, March 2003)Well, I guess it turned out to be a wonderful thing! We said many times throughout her treatment years that the goal was not to die with extra stem cells and despite trying to have just enough, she died with stem cells in the freezer! Today I was very happy we took her to the St. Pat's (incredible) parade in NYC instead of subjecting her to spend yet another day trying to collect stem cells!!
Shayla on Shayne's lap (March 2003) at "Start with Art" at the Met in NYC! (With teachers Caroline and Nitza, we still keep in touch with them!!)We didn't receive the greatest of news at the eye doctor's this afternoon. Her doctor feels her right eye is starting to slip back into the problems she was having before last year's many months of vision therapy in Toledo. Ergh! I knew that it could happen, but because she's doing remarkably well with reading, I never thought of it! (Her third grade teacher came to me last week telling mne she tested Shayla's grade level for reading and it is a sixth grade level. She's now moving on to some independent reading work at school and is reading "From the Mixed Up Files of Mrs. Basil E. Frankweiler" - a great story with a reading level of sixth grade, eighth month. The story takes place at the Met in NYC! Shayla remembers her days at the Met with great admiration!) Soooooooooooo, we won't have that "eye patch burning party" she talks about quite yet; we are now back to doing daily eye exercises to try to get her right eye back on track, but at least we don't have to travel back to Toledo. (Amazing to me is she gained five grade levels in reading in a year. Her uncle Jeff recently joked with her, "Keep that up you'll be going off to college next year." Upon hearing that, she blushed, looked down and had a large grin.
Yes, a bagpiper in the bar. (See? Culture and education, right?! Hee hee!) Next we went to musical practice where she had a ball! I continue to marvel over her amazing attitude, drive and spirit; what a blessing! We are so blessed to have her!! Today I contacted a friend (and single mom) who lost her only child to neuroblastoma on this day in 2004. Thank you, dearest Lord for Shayla!! I am not worthy of this incredible gift!
Shayla had a very busy, very pleasant day – until early this evening then everything changed. Now she won’t admit it, but I think she has an upset stomach – and probably a broken heart or at least a big disappointment in her soul. This afternoon we colored Easter eggs, then went to a very cold, but very nice egg hunt. It was a great day together.
PICTURE: Yes, an egg hunt in the snow!
Well, one could assume (with great accuracy) that I've lost my mind (and most likely my wallet). We've decided to lease a horse so that Shayla can be in a (second) 4H club and show a horse at the fair in addition to her bunny, Swifter. Today she had her first (horse) 4H meeting and again I was beyond impressed with these amazing 4H advisors and their program! There are seven new club members (all seemed about 9 years old, fancy that! Shayla was in all her glory and I just kept thinking, "Christi would have absolutely loved all of this!") and they had a special meeting just for the new girls today. Some of the older girls were there, during this 2 1/2 hour meeting, and Shayla really enjoyed it all as they pretended to be the judge and taught her what she needs to do.
Shayla is anxious to get back to musical practice next week. The show will be the last weekend in March. Here are some pictures a sweet mom, who kept Shayla at her house for a few days when we left for NYC with Christi back in 2002, took at dress rehearsal and shared with me. Thanks, Cathy!
I'm certain I should just delete this entry and try to get some sleep. It's been a long, tough week. Shayne has been in Vegas all week for work. (Did I really type work and Las Vegas in the same sentence? Hmmmm.) I cannot wait for him to get home; communication has been challenging.
A couple of pictures of Shayla at ballet. The musical has been rescheduled for the last weekend in March. Because they sold out both shows and had a lengthy waiting list, they are going to try to add a Saturday afternoon show too. Shayla cannot wait to get back to practice.
PICTURE: Here are the future middle childhood language arts teachers I had the privilege to teach this quarter for Ohio State. This is our “Crazy Middle School Teachers” photo.
Shayla had been waiting all year for the "big one" and she finally got it! She spent about three hours playing outside yesterday and I'm certain will want to head out again as soon as she's up. She had a blast; Shayne was exhausted (smile) but really enjoyed catching up with the neighbors (over shovels, hee hee) while the kids played. Be well!!
Well, despite my previous post, I was not able to get that video uploaded properly. Wonderful "Webby" to the rescue (again)! Thanks, Eric!
Despite Shayla telling me a few days ago, "The show must go on; there are paying customers," the sold out school musical was cancelled for both Friday and Saturday nights and rescheduled for two shows on Sunday. Yet another snow storm roared in on Friday and there are to be blizzard conditions today. Shayla handled the news very well and I think because she got home from the 5PM dress rehearsal after 10PM on Thursday night, we were all happy to just go to bed early.
REMINDER: Heidelberg College Junior Education Majors

Shayne was to compete in the Arnold Schwarzenegger “Pump & Run” competition over the weekend in Columbus, so Shayla and I left straight from school on Friday for my sister and brother-in-law’s home. We had a great weekend and it was a wonderful way to end Shaylauary. It continues to break my heart that she no longer has a sister to play with and I am so grateful she has awesome cousins who bring her so much joy! Shayne did a fabulous job in the competition and it is wonderful he takes such great care of his health! It was great to all be back together again on Sunday!
Gil treated us all to the circus in Cincinnati on Saturday night and we had a great time. Of course the last time I attended a Ringling Brothers circus, mom was sitting with me too. We went with the Ronald House families in NYC when she flew in to help out. We both remembered how five year old Christi kept saying, “It’s not THE greatest show on earth. Who decided it was THE greatest show on earth?” She liked it, but disagreed with that title – what a hoot she was!
Christi (in pink hat), Grandma Nonee and Shayla at the Circus in NYC (March 2003) Christi is eating popcorn and sitting beside a little sweetie named Emma. Emma died of NB in June of 2003. Christi named one of her Build-a-Bear bears "Emma". I hope the girls are playing with their Build-a-Bears in Heaven and not looking back on the painful times they lived!
We went to bed together like this on many occassions! Christi's "bed" was really just a matress on the floor because we were afraid she'd roll out and get hurt when we took her out of the crib to get ready for Shayla. She never did and eventually, she got a real bed - a hand-me-down from my college apartment. Now it's Shayla's and we still say it's the most comfortable bed in the house!